Upcoming Events

Unless otherwise indicated, events will be held in the St. Louis area.  Where available, follow the provided links for more information.

RESCHEDULEDBack to School Event – Saturday, August 26, 2017 from 12:00 – 2:00 P.M.
WHERE: Family Golf and Learning Center-3717 Tree Court Industrial Blvd. (off Marshall Rd.) Valley Park, 63122
• FREE Mini-Golf
• FREE food (hot dog, soda, and chips)
• FREE bucket of balls for the driving range
• FREE TIME to speak with Craig Story-a professional golf instructor AND a member of the Tourette family (For more information on Craig or the Family Golf Center, visit: http://www.FamilyGolfOnline.com.)
**There will be School/Parent packets available as well as Board members present to answer questions **
RSVP TO Lynn Dunlap by Aug. 18th: lmchd52@gmail.com or Phone: 314-984-9019

 

In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019

 

Announcing: Lu Moorman Camp Scholarship

The Lu Moorman Memorial Camp Scholarship 

It’s hard to believe that it’s been a year since our Chapter lost our beloved champion, Lu Moorman.  With her family’s permission, we have decided to honor Lu’s legacy by dedicating our camp scholarships program to her memory.

Lu did so very much…for so many families…for so many years, that her name was practically synonymous with “Tourette Syndrome” for families and educators in the St. Louis and greater Missouri area.  Families and educators alike, who sought Lu’s assistance, always received it, and she was a tireless fund-raiser, too.  But these activities were only part of her personal mission.  Lu had a passion for “FUN-raising,” and that’s what we loved most about her!  Lu knew that “fun” was something that kids with Tourette Syndrome might not always find in school or other social situations. However, she knew that if kids with TS could just experience a camp especially for them, then “real fun” would be the inevitable result!

Many years ago she encouraged children in our chapter to go to Joshua Center Camp in Lee’s Summit, MO.  Some took her up on the recommendation and, it was so good, that they went back—year after year!  The word spread and even more kids went!  It soon became an annual tradition for our chapter to not only encourage participation, but to also offer camp scholarships making camp possible for anyone. It was all thanks to Lu, all her idea!  It only makes sense to continue now what she started, and to do so, in her memory!  Simply put, we wouldn’t be where we are as a chapter today without Lu’s guidance, vision, and generous spirit.  Lu, you were our “glue,” and we sure do miss you!

Therefore, we are continuing the tradition to offer scholarship funds available for Joshua Center Camp, as well as expanding it to other TS camps that are offered.

In order to apply for scholarship funds, the following rules apply:

  • You must be a dues-paid current member of the Tourette Association of America and participant in the Missouri Chapter.
  • The camp must be one that offers a program specifically for children / youth with Tourette Syndrome.
  • You must register your child, pay the required deposit, and be approved for camp participation. After receiving approval, you must submit a scholarship application.
  • Full or partial scholarships for the remainder will be paid directly to the camp.
  • If your child receives a full or partial scholarship, then cannot attend camp for any reason, we ask that you notify us as soon as possible.

Please email MISSOURITSA@YAHOO.COM for an application.

Here are some links to camps, so you can peruse the possibilities! Note:  scholarship amounts may be limited, based on total camp costs, number of applications received, and eligibility. The final decision will be made by the Board of Tourette Association of America – Missouri Chapter.

Joshua Center Camp —  Lees Summit, MO

Camp Twitch & Shout —  Winder, GA

Tourette Syndrome Camp Organization (TSCO) – Tourette Syndrome Camp USA —  Ingleside, IL

 

Brain Scans of Children with Tourette offer clues

An interesting article has just been published by Washington University in St. Louis: https://source.wustl.edu/2016/10/brain-scans-children-tourettes-offer-clues-disorder/

Meetings and Events 2016-17

Our chapter hosts a number of meetings and events during the year.

Below is a summary of the upcoming events for the 2016-17 school year.

Unless otherwise indicated, events will be held in the St. Louis area.  Where available, follow the provided links for more information.

April 29, 2017 – Family Golf Center: Craig Story, ranked by Golf Digest as one of the Top Ten teaching professionals, will meet with the Tourette families from noon until 2 PM.  He will help the young people have a little fun as they learn how to drive golf balls! For more information on Craig or the Family Golf Center, visit: http://www.FamilyGolfOnline.com. Please rsvp to 314-984-9019 (Lynn) or email: missouritsa@yahoo.com

June, 2017 – Gateway Grizzlies minor league baseball game Family Night (Date/Time to be announced)

AND DON’T FORGET SUMMER CAMP! Please visit http://www.JoshuaCenter.com for more information on the special Tourette week June 5th to 8th, 2017. Register at: CAMP.

In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019

PAST EVENTS:

Oct. 20  7-8:30     Back to School Night

Destiny Church (basement rear entrance) 1809 Des Peres Rd, St. Louis 63131

Stress, Attention Deficit, Hypersensitivities, Behavior

These are all issues that parents in Tourette Families are so familiar with.  Cognitive Behavior Intervention for Tics, or CBIT, will be our topic for the evening.  Karen Balk, a Clinical Occupational Therapist with Washington University Occupational Therapy Clinical Practice will be our speaker.  As a therapist currently practicing CBIT in our area, she can relay information on this newest tic therapy, as well as how to access it locally.  Karen is also quite knowledgeable on working with Sensory, Attention, and Stress Management issues that may be of concern to your child.

Teachers, Parents, and Families are all welcome. Information packets will be available for everyone.     Hope to see you there!

January 13, 2017 – Children’s Friday Night Activity at Chesterfield Sports Fusion

We will meet at 5:30 PM on Friday, January 13th for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.

Call (314)984-9019 with any further questions.

 

Our Website is Moving!!

Effective October 1st, 2016, all Tourette Association local chapter websites will be taken over as micro sites connected to the National Tourette Association of America site.  This can be accessed by going to tourette.org    Click on “Resources & Support” on the homepage, then “Find a Local Chapter” on the menu, and select Missouri.

You will be routed to the local Missouri Chapter site.  We hope this transition will take place smoothly, and that our local information will be easily accessed.  If you are having trouble with this, please contact us at our email:  missouritsa@yahoo.com

Don’t Miss This April 5 Opportunity

MBHimle2

 

We hope you’ll join us, the morning of April 5, to hear nationally recognized Tourette Syndrome expert Dr. Michael Himle, pictured above. He will share information on TS research and the newest behavioral therapies, including Comprehensive Behavioral Intervention for Tics (CBIT).

The meeting starts at 9 a.m. at the Drury Inn & Suites, 11980 Olive Blvd., Creve Coeur, MO 63141.

Please print and share this flier with anyone whom you think might be interested in attending.  And please remember to RSVP to lmchd52@gmail.com.

March 6 Kansas City Support Group Meeting

The first Tourette Syndrome Association support group meeting in the Kansas City area is scheduled for March 6. The meeting will start with a 30-minute presentation by TSA Youth Ambassador Jaren Zimmermann. Details follow.

Diagnosed with TS when he was 11 years old, Jaren attended a “Trip to the Hill” event with the Tourette Syndrome Association in Spring 2013, visiting members of the Missouri Congressional delegation. While in DC, Jaren was trained in the Youth Ambassador presentation on TS awareness and bullying.

Following Jaren’s presentation on March 6, there will be a meet-and-greet time for all attendees.

    MEETING DETAILS
    March 6, 2014
    6:30PM – 8:00PM
    Community Room
    Children’s Mercy Northland
    501 NW Barry Road
    Kansas City, MO 64155

Questions or comments can be emailed to either dzimm1224@gmail.com OR jarenzimmermann.ya.tsa@gmail.com.

Action Alert: TS Caucus Update

Last month, we asked you to write your Members of Congress and encourage them to join the new Congressional Caucus on TS. We’re now asking that you write again, this time encouraging the same officials to send someone from their staff to a planned Congressional briefing session about TS on Sept. 17.

Here’s a link to assist you with making this request.

As always, we encourage you to re-phrase the template letter (available through the page linked above) in your own words.

October Back-to-School Event

From 7 to 8:30 p.m. on Thursday, October 3, our chapter plans to host a combined event for parents, teachers, and kids at Destiny Church, 1809 Des Peres Road, St. Louis, MO 63131 (near I-270 & Manchester Road).

Please park in the lower lot and use the back entrance of the church complex.

Our featured speaker for parents and teachers will be resource special educator Jullie Jacob, a recent SSD/Affton Teacher of the Year. Julie will offer information on a number of topics, including tips for (a) helping TS kids get organized and handle homework, (b) working with a child’s classroom teacher, (c) managing IEP meetings … and more.

Please feel free to invite your child’s teacher to this event. Informational packets will be available.

In addition, during Jullie’s presentation, we will be offering a game night for your children, so they can have some fun and social time, too.

We hope to see everyone there.

Action Alert: Missouri and the Congressional TS Caucus

WashingtonDC

The national TSA has worked closely with members of the U.S. House of Representatives to establish a Bipartisan Congressional Caucus on Tourette Syndrome. Unfortunately, as of Aug. 15, members of the Missouri delegation had not yet joined this caucus.

Help us change that situation.

Please visit — and encourage your friends and family to visit — this Web page. There, the “Take Action” link provides an easy opportunity to edit and email a personalized message to your U.S. Representative and both U.S. Senators from Missouri, encouraging them to start a similar caucus in the Senate. Be sure to add a sentence or two about how TS is relevant to your family.

We appreciate your support.