Our next Chapter event is the extremely popular Chesterfield Sports Fusion night, coming up on Friday, February 21, 2020. Join us for pizza and conversation at 5:30. At 6:30, we’ll distribute wristbands for two hours of laser tag, mini-golf, wall-climbing, and more! Your RSVP to Julia (wgrahj @ aol .com) is requested BEFORE 2/10 so that we can confirm plans with Chesterfield Sports Fusion.
[If you don’t see a current event here, please check our events page. If you don’t see it there, please don’t hesitate to email!]
We wanted to share a special opportunity for those living in the greater St Louis area (or slightly beyond?). Our friends over at the Washington University School of Medicine are looking for children between the ages of 10-14 who can participate in a research study on tics and Tourette. Please see the attached flier for more information or email: Tourette @ WUStL (dot) edu.
CLICK HERE for the PDF: LoTS_Flyer (Tourette study)
Tourette Chapter: CBIT & Family Night
WHEN: Friday, May 31 @ 6:00 P.M.
WHERE: Redeemer Church: 6450 S Kingshighway, St. Louis, 63109
Cognitive Behavior Intervention for Tics (CBIT) has proven to be one of the best therapies for those with Tourette. CBIT focuses on tic-awareness and competing response training. Karen Balk, Occupational Therapist, is going to be leading a discussion for parents on this therapy and how it can benefit children and teens.
In addition, Devin Downey, one of our young adults with Tourette, will be hosting a movie night for the kids in a Theater Room. They’ll be able to watch “The Secret Life of Pets” while we meet.
Our host facility, Redeemer Church, has offered use of several meeting spaces to allow for families to attend and benefit from the time together. There is no cost for this event.
For more information or to RSVP, please email:
LMCHD52@gmail.com or call 314-984-9019
Kelly Crawford, now an adult who came through the MO Chapter, has just written her first children’s book, The Adventures of Willy, the Baby Waterbug. While the book is not specifically about Tourette, it is a children’s story that teaches a lesson about listening to what his parents say. It’s available on Author House, Amazon, and other web sites.
Please make plans to join us on April 29, 2019 at a very special event! Open to all those who have Tourette, families impacted, and professionals who are interested in learning more about Tourette Syndrome and tic disorders, this will be an amazing day. Please check out the flier for more information and register on-line at: https://sites.wustl.edu/tics/tic-talk-2019/
February 22, 2019 – Family Friday Night Activity at Chesterfield Sports Fusion
We will meet at 5:30 PM on Friday, February 22nd for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.
A great time was had by all as Tourette families and Tourette Board members gathered at our Back to School Summer Splash on Sunday, August 12th. Information packets were available to bring to school for the Fall, as well as time to share snacks and network with other families and some of our board members.
One of our board, Maureen Downey, donated materials and shared her expertise as a Master Tie-Dyer, helping us to create some fantastic work of art t-shirts. Our families stayed afterward to enjoy fun in the sun together in the waterpark and pool complex at River Chase in Fenton, MO.
Thanks to all our families who participated, and we can’t wait to see the pictures of how well your Tie-Dye t-shirts turned out! Please share your pictures with us on Facebook.
Stay tuned for upcoming details of our next Event and you can always email suggestions to MissouriTSA@yahoo.com
For decades, Lu Moorman was a stalwart champion for the Missouri Chapter. She traveled and spoke to countless individuals and groups about Tourette and fought for the rights of our children. With her family’s permission, we have decided to honor Lu’s legacy by dedicating our camp scholarships program to her memory.
Lu did so very much for so many years in the St. Louis and greater Missouri area, that her name was practically synonymous with “Tourette Syndrome” for families and educators. Anyone who sought Lu’s assistance always received it. In addition, Lu was a tireless fund-raiser, too. But these activities were only part of her personal mission. Lu had a passion for “FUN-raising,” and that’s what we loved most about her! Lu knew that “fun” was something that kids with Tourette Syndrome might not always find in school or other social situations. However, she knew that if kids with TS could just experience a camp especially for them, then “real fun” would be the inevitable result!
Many years ago she encouraged children in our chapter to go to Joshua Center Camp in Lee’s Summit, MO. Some took her up on the recommendation and, it was so good, that they went back—year after year! The word spread and even more kids went! It soon became an annual tradition for our chapter to not only encourage participation, but to also offer camp scholarships making camp possible for anyone. It was all thanks to Lu, all her idea! It only makes sense to continue now what she started, and to do so, in her memory! Simply put, we wouldn’t be where we are as a chapter today without Lu’s guidance, vision, and generous spirit.
Lu, you were our “glue,” and we sure do miss you!
Therefore, we are continuing the tradition to offer scholarship funds available for Joshua Center Camp, as well as expanding it to other TS camps that are offered.
In order to apply for scholarship funds, the following rules apply:
You must be a dues-paid current member of the Tourette Association of America and participant in the Missouri Chapter.
The camp must be one that offers a program specifically for children / youth with Tourette Syndrome.
You must register your child, pay the required deposit, and be approved for camp participation. After receiving approval, you must submit a scholarship application.
Full or partial scholarships for the remainder will be paid directly to the camp.
If your child receives a full or partial scholarship, then cannot attend camp for any reason, we ask that you notify us as soon as possible.
Please email MISSOURITSA@YAHOO.COM for an application.
Unless otherwise indicated, events will be held in the St. Louis area. Where available, follow the provided links for more information.
2018 Event Schedule:
August 12, 2018 – Tourette’s Syndrome: Back to School meeting
Back to School “Splash”
**Tie-Dye** **Snack** **Swim**
WHEN: Sunday, August 12, 2018
TIME: Activities start at 1:00 PM
WHERE: River Chase Community Center – 990 Horan Dr., Fenton, MO.
We have reserved a Multipurpose Room from 1:00 to 3:00 PM. Please join us for Tie-Dye, Snacks, and relationship building.
** Tie-Dye: Bring your own Prewashed 100%Cotton shirt. We’ll have everything else! ** Pop-Corn and water provided. Please feel free to bring additional snacks for your family or to share with the group!
**There will be School/Parent packets available as well as Board members present to answer questions. Dr. Sheel Pathak (Pediatric Neurologist) will also be in attendance to talk to attendees. RSVP TO Lynn Dunlap by August 6th to email@example.com or Ph: 314-984-9019
In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019. Our Young Adult speaker, Drew Guise, can be reached at 636-938-3858.
An interesting article has just been published by Washington University in St. Louis: https://source.wustl.edu/2016/10/brain-scans-children-tourettes-offer-clues-disorder/