Lonny Kramer recently volunteered to help manage our website. He doesn’t have any experience with websites or WordPress pages, but is putting his best effort into the task. Now, onto the real message….We apologize for not updating the site for a long time, but we are still working for you. We are researching multiple activities we can sponsor throughout the next 12 months and will soon present the activities and schedule. Please be patient with us. In the meantime, every member can offer to host an informal get together at any time, just to keep us all in the mindset of getting our families together. Have a great Fall and Happy Halloween!!!
The Tic Talk 2020 conference has been moved to an online format and will be held via Zoom.
Zoom is a online video conference platform that will be used to share the meeting content live, online. Speakers may also need to participate remotely via Zoom. If you do not already have a Zoom account, you can download the free Zoom app here:https://zoom.us/signup
Tic Talk 2020 is a community event for patients, families and professionals interested in learning more about Tourette Syndrome and tic disorders. Local and national speakers will cover a variety of topics.
Tic Talk 2020 is sponsored by the TAA Center of Excellence at Washington University in St. Louis, and supported by the Tourette Association of America, its Greater Missouri chapter and the McDonnell Center for Systems Neuroscience. CME is available for physicians, and Continuing Education certificates of attendance will be available to other professionals (educators, counselors, therapists).
This seminar has been moved to an online format using Zoom.
Questions? Contact email@example.com or 314-362-5041
The Family Fun Game Night scheduled from 6 to 9 PM on Saturday, April 4th, to play a few fun games at Miniature Market StL has been postponed due to the CDC recommendations during the pandemic. (13380 Manchester Rd, StL 63131)
[If you don’t see a current event here, please check our events page. If you don’t see it there, please don’t hesitate to email!]
We wanted to share a special opportunity for those living in the greater St Louis area (or slightly beyond?). Our friends over at the Washington University School of Medicine are looking for children between the ages of 10-14 who can participate in a research study on tics and Tourette. Please see the attached flier for more information or email: Tourette @ WUStL (dot) edu.
CLICK HERE for the PDF: LoTS_Flyer (Tourette study)
Tourette Chapter: CBIT & Family Night
WHEN: Friday, May 31 @ 6:00 P.M.
WHERE: Redeemer Church: 6450 S Kingshighway, St. Louis, 63109
Cognitive Behavior Intervention for Tics (CBIT) has proven to be one of the best therapies for those with Tourette. CBIT focuses on tic-awareness and competing response training. Karen Balk, Occupational Therapist, is going to be leading a discussion for parents on this therapy and how it can benefit children and teens.
In addition, Devin Downey, one of our young adults with Tourette, will be hosting a movie night for the kids in a Theater Room. They’ll be able to watch “The Secret Life of Pets” while we meet.
Our host facility, Redeemer Church, has offered use of several meeting spaces to allow for families to attend and benefit from the time together. There is no cost for this event.
For more information or to RSVP, please email:
LMCHD52@gmail.com or call 314-984-9019
Kelly Crawford, now an adult who came through the MO Chapter, has just written her first children’s book, The Adventures of Willy, the Baby Waterbug. While the book is not specifically about Tourette, it is a children’s story that teaches a lesson about listening to what his parents say. It’s available on Author House, Amazon, and other web sites.
Please make plans to join us on April 29, 2019 at a very special event! Open to all those who have Tourette, families impacted, and professionals who are interested in learning more about Tourette Syndrome and tic disorders, this will be an amazing day. Please check out the flier for more information and register on-line at: https://sites.wustl.edu/tics/tic-talk-2019/
February 22, 2019 – Family Friday Night Activity at Chesterfield Sports Fusion
We will meet at 5:30 PM on Friday, February 22nd for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.