Brain Scans of Children with Tourette offer clues

An interesting article has just been published by Washington University in St. Louis: https://source.wustl.edu/2016/10/brain-scans-children-tourettes-offer-clues-disorder/

Meetings & Events 2016-17

Our chapter hosts a number of meetings and events during the year.

Below is a summary of the upcoming events for the 2016-17 school year.

Unless otherwise indicated, events will be held in the St. Louis area.  Where available, follow the provided links for more information.

January 13, 2017 – Children’s Friday Night Activity at Chesterfield Sports Fusion

We will meet at 5:30 PM on Friday, January 13th for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games. For more information or to RSVP, contact Diana Guise @ 636 – 938 – 3858.

April, 2017 – Children’s Golf Outing (Date/Time to be announced)

June, 2017 – Gateway Grizzlies minor league baseball game Family Night (Date/Time to be announced)

AND DON’T FORGET SUMMER CAMP! Please visit http://www.JoshuaCenter.com for more information on the special Tourette week June 5th to 8th, 2017. Register at: CAMP.

In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019

PAST EVENTS:

Oct. 20  7-8:30     Back to School Night

Destiny Church (basement rear entrance) 1809 Des Peres Rd, St. Louis 63131

Stress, Attention Deficit, Hypersensitivities, Behavior

These are all issues that parents in Tourette Families are so familiar with.  Cognitive Behavior Intervention for Tics, or CBIT, will be our topic for the evening.  Karen Balk, a Clinical Occupational Therapist with Washington University Occupational Therapy Clinical Practice will be our speaker.  As a therapist currently practicing CBIT in our area, she can relay information on this newest tic therapy, as well as how to access it locally.  Karen is also quite knowledgeable on working with Sensory, Attention, and Stress Management issues that may be of concern to your child.

Teachers, Parents, and Families are all welcome. Information packets will be available for everyone.     Hope to see you there!

Call (314)984-9019 with any further questions.

 

Our Website is Moving!!

Effective October 1st, 2016, all Tourette Association local chapter websites will be taken over as micro sites connected to the National Tourette Association of America site.  This can be accessed by going to tourette.org    Click on “Resources & Support” on the homepage, then “Find a Local Chapter” on the menu, and select Missouri.

You will be routed to the local Missouri Chapter site.  We hope this transition will take place smoothly, and that our local information will be easily accessed.  If you are having trouble with this, please contact us at our email:  missouritsa@yahoo.com

Baseball game! RSVP!

Hey baseball fans! On Sunday, June 12th, at 1 PM, the Tourette Association of America: Missouri Chapter is heading to the ballpark and cheer on the River City Rascals!

It will be an exciting day for our Tourette family as we sit directly behind home plate and watch as our own Youth Ambassador, Drew Guise, throws out the first pitch. The Rascals are even playing a double-header that day, so you are welcome to stay for the second game for FREE!

If that isn’t enough, the ballpark is having a special Star Wars theme for the day. Characters from the movie will be on hand to offer Jedi Training and lightsaber battles. (Come on! You know the Force will be with you as you battle Darth Maul!)

Our Chapter will be purchasing two tickets for each Tourette family as well as giving each child $5 in Rascal Bucks to spend on food or souvenirs.

The River City Rascals Stadium is located at: 900 T R Hughes Blvd in O’Fallon, MO 63366.

RSVP deadline is Tuesday, May 31st. To reserve your tickets, call or email Kurtis Matzkind at kmatzkind@hotmail.com or 616-802-0472.

Hello everyone,

We wanted to pass along the sad news that Lu Moorman, our long-time Board member has passed away. Lu has had several health struggles recently but this has come as a shock.

Lu was a strong advocate for Tourette awareness, a very knowledgeable education liaison, and a good friend to so many. She managed to balance great patience and kindness with incredible strength and fortitude when advocating for many of our children’s rights. She will be greatly missed.

The Board will be sending flowers for her memorial, but we wanted to make sure to alert everyone.

Visitation is from 10 AM to noon on Thursday, April 28 at St. Catherine Laboure (9750 Sappington Rd., St. Louis, 63128). The memorial Mass will then take place at noon.

Please keep the family in your thoughts and prayers.

The Board of the Tourette Association – Missouri Chapter

Joshua Center Camp

The greater Missouri Tourette Association offers scholarships for Camp Joshua to members whose dues are current. Below you can find a letter from Camp Joshua with more information. If you have any questions you can contact Lynn Dunlap via email at lmchd52@gmail.com.

“Dear Joshua Center Friends,

Have you registered your child for camp yet?

SESSION 1: June  6th – 8th (for children who have completed 3rd grade – 6th grade)

SESSION 2: June 9th – 12th (for children who have completed 7th grade – 12th grade)

Each summer we host more than 120 kids at our camps. Our camps are accredited with the American Camp Association. Space is limited and slots fill quickly, so please register early! If you have any questions at all about camp, please give us a call at 816-763-7605.

Click HERE to find out more information and to get registered. We also have a couple of ways to help you raise funds for your camp fees. World’s Finest Chocolate Bars (info on that below) and a Yankee Candle fundraiser.

Sarah Oliver

Executive Director

sarah@joshuacenter.com “

Family Event Pictures

Please enjoy these pictures taken at our Chesterfield Sports Fusion family fun night!

 

Tourette Association Family Event

On Friday, January 22nd, the Missouri Chapter of the Tourette

Association will be sponsoring a FREE EVENT at Chesterfield Sports Fusion. CSF offers mini-golf, dodgeball, laser tag, a climbing wall, a variety of video games and more.
The Tourette Association will sponsor up to two children per family with an Attraction Sampler Pack that evening. We will also have a party room from 5 – 8 PM with pizza and drinks.

Due to the space and size requirements, we are requiring reservations by January 6th. Please rsvp or direct questions to Diana Guise [636-938-3858 or StLGuises@yahoo.com] or the Missouri Chapter email address: MissouriTSA@yahoo.com.

2015-2016 Tentative Meeting and Event Schedule

Below is a summary of upcoming meeting and events for the 2015-16 school year. Unless otherwise indicated, events will be in the St. Louis area. Where available, follow the provided links for more information.

Oct.1: 7:00-8:30 Back To School Night, Destiny Church(basement), 1809 Des Peres Rd. 63131 Jackie Schechter(Washington University Senior) and Kurtis & Courtney Matzkind(Kurtis is a high school teacher w/TS) talk about their experiences growing up with TS and navigating successfully through school, jobs, and relationships.

Lynn Dunlap(Special Education teacher and School Psychological Examiner) will also be available for questions, and a book review on current literature pertaining to TS.

Parents, Teachers, and Students are welcome. Teacher information packets will be available for you to take to your child’s school.

January 22nd – Chesterfield Sports Fusion,  5:00 -8:00 pm 

On Friday, January 22nd, the Missouri Chapter of the Tourette

Association will be sponsoring a FREE EVENT at Chesterfield Sports Fusion. CSF offers mini-golf, dodgeball, laser tag, a climbing wall, a variety of video games and more.
The Tourette Association will sponsor up to two children per family with an Attraction Sampler Pack that evening. We will also have a party room from 5 – 6 PM with pizza and drinks.

Due to the space and size requirements, we are requiring reservations by January 6th. Please rsvp or direct questions to Diana Guise [636-938-3858 or StLGuises@yahoo.com] or the Missouri Chapter email address: MissouriTSA@yahoo.com.

 

June – Children’s Activity (To Be Announced)

Look for upcoming information about our First Annual Tourette Syndrome Walk!

In addition, if you would like to request an association speaker for your child’s school, please contact us at 314-984-9019.

Take a minute to help students and adults who have Tourette Syndrome!

Please take 3-4 minutes and help students and adults who have Tourette Syndrome.  By clicking the links below, you will be provided with an easy, and quick method to automatically send an important email to your representations regarding education issues and funding for TS research. Additionally, this will result in awareness that TS is an important disorder that impacts thousands of their constituents and which requires their continued support.  Following are brief summaries and links.

Ø  Education 

  1. Students who are bright and have diagnoses that interfere with their education are being denied necessary services.
  2. Manifestation Determination protection MUST NOT be removed from IDEA. This protects students with disabilities from being suspended for symptoms. For additional information regarding protections provided by manifestation determination, read Letter of the Month that is at the top of TS website Education Page. http://tsa-usa.org/Education/education_main.htm
  3. Require that College Education Majors and teachers who are re-certifying receive information regarding TS

http://cqrcengage.com/tsa/app/write-a-letter?11&engagementId=123893

 

Ø  Include TS in Research   

Tourette Association has an opportunity to be included in a bill regarding funding for research of neurological disorders.http://cqrcengage.com/tsa/app/write-a-letter?11&engagementId=123893

Thank you in advance.