Little Billy animated series news

Let us celebrate the bright side of Tourette Syndrome and support the TAA with this official t-shirt from Little Billy (available in black & teal)! Created by The Simpsons lead animator and TAA Youth Ambassador, Chance Raspberry, Little Billy is the world’s first and only animated series about neurodiversity, special needs, and the power of being different! Designed, directed and animated by someone living with Tourette Syndrome, Chance celebrates creativity, diversity of a 1980s childhood and Tourette awareness with this project! For every shirt purchased through Indigogo, a portion of the proceeds will be donated to the Tourette Association of America. Use the link:  http://www.LittleBilly.com  to purchase your one of a kind t-shirt today AND support the TAA!

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Upcoming Events

Unless otherwise indicated, events will be held in the St. Louis area.  Where available, follow the provided links for more information.

2017/18 Events and Activities Schedule
November 4, 2017  –  3:00 pm – Fall Family Fun       Kramer Family Home
An afternoon get together of community, bounce house, basketball, bikes, pizza, and a bonfire, with a chance for kids to hang out, and parents to connect with each other.  RSVP to Tami Kramer(314)973-6938/schwamp101@Hotmail.com by Nov.1 (see Facebook page for details)

January 19, 2018  –  Chesterfield Sports Fusion Night (more details to come!)

April, 2018  –  Panel Discussion “Ask the Doctors, OT, Pharmacist, Educator”.  A  night of Q & A with various Tourette professionals.  Babysitting available. (Details pending)

June, 2018  –  Family Picnic/Pool Party (Details pending)

In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019. Our Young Adult speaker, Drew Guise, can be reached at 636-938-3858.

Announcing: Lu Moorman Camp Scholarship

The Lu Moorman Memorial Camp Scholarship 

It’s hard to believe that it’s been a year since our Chapter lost our beloved champion, Lu Moorman.  With her family’s permission, we have decided to honor Lu’s legacy by dedicating our camp scholarships program to her memory.

Lu did so very much…for so many families…for so many years, that her name was practically synonymous with “Tourette Syndrome” for families and educators in the St. Louis and greater Missouri area.  Families and educators alike, who sought Lu’s assistance, always received it, and she was a tireless fund-raiser, too.  But these activities were only part of her personal mission.  Lu had a passion for “FUN-raising,” and that’s what we loved most about her!  Lu knew that “fun” was something that kids with Tourette Syndrome might not always find in school or other social situations. However, she knew that if kids with TS could just experience a camp especially for them, then “real fun” would be the inevitable result!

Many years ago she encouraged children in our chapter to go to Joshua Center Camp in Lee’s Summit, MO.  Some took her up on the recommendation and, it was so good, that they went back—year after year!  The word spread and even more kids went!  It soon became an annual tradition for our chapter to not only encourage participation, but to also offer camp scholarships making camp possible for anyone. It was all thanks to Lu, all her idea!  It only makes sense to continue now what she started, and to do so, in her memory!  Simply put, we wouldn’t be where we are as a chapter today without Lu’s guidance, vision, and generous spirit.  Lu, you were our “glue,” and we sure do miss you!

Therefore, we are continuing the tradition to offer scholarship funds available for Joshua Center Camp, as well as expanding it to other TS camps that are offered.

In order to apply for scholarship funds, the following rules apply:

  • You must be a dues-paid current member of the Tourette Association of America and participant in the Missouri Chapter.
  • The camp must be one that offers a program specifically for children / youth with Tourette Syndrome.
  • You must register your child, pay the required deposit, and be approved for camp participation. After receiving approval, you must submit a scholarship application.
  • Full or partial scholarships for the remainder will be paid directly to the camp.
  • If your child receives a full or partial scholarship, then cannot attend camp for any reason, we ask that you notify us as soon as possible.

Please email MISSOURITSA@YAHOO.COM for an application.

Here are some links to camps, so you can peruse the possibilities! Note:  scholarship amounts may be limited, based on total camp costs, number of applications received, and eligibility. The final decision will be made by the Board of Tourette Association of America – Missouri Chapter.

Joshua Center Camp —  Lees Summit, MO

Camp Twitch & Shout —  Winder, GA

Tourette Syndrome Camp Organization (TSCO) – Tourette Syndrome Camp USA —  Ingleside, IL

 

Brain Scans of Children with Tourette offer clues

An interesting article has just been published by Washington University in St. Louis: https://source.wustl.edu/2016/10/brain-scans-children-tourettes-offer-clues-disorder/

Meetings and Events 2016-17

Our chapter hosts a number of meetings and events during the year.

Below is a summary of the upcoming events for the 2016-17 school year.

Unless otherwise indicated, events will be held in the St. Louis area.  Where available, follow the provided links for more information.

April 29, 2017 – Family Golf Center: Craig Story, ranked by Golf Digest as one of the Top Ten teaching professionals, will meet with the Tourette families from noon until 2 PM.  He will help the young people have a little fun as they learn how to drive golf balls! For more information on Craig or the Family Golf Center, visit: http://www.FamilyGolfOnline.com. Please rsvp to 314-984-9019 (Lynn) or email: missouritsa@yahoo.com

June, 2017 – Gateway Grizzlies minor league baseball game Family Night (Date/Time to be announced)

AND DON’T FORGET SUMMER CAMP! Please visit http://www.JoshuaCenter.com for more information on the special Tourette week June 5th to 8th, 2017. Register at: CAMP.

In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019

PAST EVENTS:

Oct. 20  7-8:30     Back to School Night

Destiny Church (basement rear entrance) 1809 Des Peres Rd, St. Louis 63131

Stress, Attention Deficit, Hypersensitivities, Behavior

These are all issues that parents in Tourette Families are so familiar with.  Cognitive Behavior Intervention for Tics, or CBIT, will be our topic for the evening.  Karen Balk, a Clinical Occupational Therapist with Washington University Occupational Therapy Clinical Practice will be our speaker.  As a therapist currently practicing CBIT in our area, she can relay information on this newest tic therapy, as well as how to access it locally.  Karen is also quite knowledgeable on working with Sensory, Attention, and Stress Management issues that may be of concern to your child.

Teachers, Parents, and Families are all welcome. Information packets will be available for everyone.     Hope to see you there!

January 13, 2017 – Children’s Friday Night Activity at Chesterfield Sports Fusion

We will meet at 5:30 PM on Friday, January 13th for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.

Call (314)984-9019 with any further questions.

 

Our Website is Moving!!

Effective October 1st, 2016, all Tourette Association local chapter websites will be taken over as micro sites connected to the National Tourette Association of America site.  This can be accessed by going to tourette.org    Click on “Resources & Support” on the homepage, then “Find a Local Chapter” on the menu, and select Missouri.

You will be routed to the local Missouri Chapter site.  We hope this transition will take place smoothly, and that our local information will be easily accessed.  If you are having trouble with this, please contact us at our email:  missouritsa@yahoo.com

Baseball game! RSVP!

Hey baseball fans! On Sunday, June 12th, at 1 PM, the Tourette Association of America: Missouri Chapter is heading to the ballpark and cheer on the River City Rascals!

It will be an exciting day for our Tourette family as we sit directly behind home plate and watch as our own Youth Ambassador, Drew Guise, throws out the first pitch. The Rascals are even playing a double-header that day, so you are welcome to stay for the second game for FREE!

If that isn’t enough, the ballpark is having a special Star Wars theme for the day. Characters from the movie will be on hand to offer Jedi Training and lightsaber battles. (Come on! You know the Force will be with you as you battle Darth Maul!)

Our Chapter will be purchasing two tickets for each Tourette family as well as giving each child $5 in Rascal Bucks to spend on food or souvenirs.

The River City Rascals Stadium is located at: 900 T R Hughes Blvd in O’Fallon, MO 63366.

RSVP deadline is Tuesday, May 31st. To reserve your tickets, call or email Kurtis Matzkind at kmatzkind@hotmail.com or 616-802-0472.

Hello everyone,

We wanted to pass along the sad news that Lu Moorman, our long-time Board member has passed away. Lu has had several health struggles recently but this has come as a shock.

Lu was a strong advocate for Tourette awareness, a very knowledgeable education liaison, and a good friend to so many. She managed to balance great patience and kindness with incredible strength and fortitude when advocating for many of our children’s rights. She will be greatly missed.

The Board will be sending flowers for her memorial, but we wanted to make sure to alert everyone.

Visitation is from 10 AM to noon on Thursday, April 28 at St. Catherine Laboure (9750 Sappington Rd., St. Louis, 63128). The memorial Mass will then take place at noon.

Please keep the family in your thoughts and prayers.

The Board of the Tourette Association – Missouri Chapter

Joshua Center Camp

The greater Missouri Tourette Association offers scholarships for Camp Joshua to members whose dues are current. Below you can find a letter from Camp Joshua with more information. If you have any questions you can contact Lynn Dunlap via email at lmchd52@gmail.com.

“Dear Joshua Center Friends,

Have you registered your child for camp yet?

SESSION 1: June  6th – 8th (for children who have completed 3rd grade – 6th grade)

SESSION 2: June 9th – 12th (for children who have completed 7th grade – 12th grade)

Each summer we host more than 120 kids at our camps. Our camps are accredited with the American Camp Association. Space is limited and slots fill quickly, so please register early! If you have any questions at all about camp, please give us a call at 816-763-7605.

Click HERE to find out more information and to get registered. We also have a couple of ways to help you raise funds for your camp fees. World’s Finest Chocolate Bars (info on that below) and a Yankee Candle fundraiser.

Sarah Oliver

Executive Director

sarah@joshuacenter.com “

Family Event Pictures

Please enjoy these pictures taken at our Chesterfield Sports Fusion family fun night!