The Wash U Medicine Research Participant Registry (RPR)

The WashU Medicine Research Participant Registry (RPR) invites people of all ages and backgrounds to participate in our research studies. Participating in the registry is at no cost to you and many of the studies supported by the registry offer compensation.

Please forward to family, friends, and others who may be interested. For questions related to this study, please refer to the contact information listed on the flyer.

For information on additional research studies you might be eligible for please visit the WashU Medicine StudySearch website at https://studysearch.washu.edu/ or contact the Volunteer for Health office at 314-362-1000.

Follow Volunteer for Health (VFH) and the Research Participant Registry (RPR) on social media!

 twitter.com/WashUVFH

facebook.com/WashURPR

instagram.com/washu_vfh/

Welcome to TIC-CON26

The Tourette Association of America welcomes you to the world’s largest conference focused on Tourette Syndrome and other Tic Disorders!

A Transformative Conference Experience. This transformative event is designed for individuals and families impacted by Tourette Syndrome and other Tic Disorders, as well as the medical providers, researchers, and caregivers who support them. TIC-CON offers a unique opportunity to learn alongside others who share your experience.

Join us for a weekend of learning, connection, and fun. You’ll gain new skills, explore the latest research and treatment options, and build friendships and professional relationships that last a lifetime.

Conference Schedule

Friday, June 12 – Research Symposium

A scholarly forum highlighting state-of-the-science research across disciplines, bringing together scientists and clinicians to exchange knowledge and foster collaboration on the latest advancements in TS and Tic Disorder research. The symposium is designed for a scientific audience, emphasizing rigor, replicability, and innovation while fostering cross-disciplinary dialogue that advances the fundamental and applied science of TS and other Tic Disorders.

Saturday, June 13 & Sunday, June 14 – Family & Community Conference

The Family & Community Conference features programming for all audiences, including children, teens, adults, families, siblings, parents and caregivers, educators, and medical professionals. The goal is to learn from one another, get inspired, and make connections with peers.

Registration Information

To help ensure a high-quality experience for all attendees, space is limited and registration will be available on a first-come, first-served basis. We encourage you to take advantage of early bird registration to secure your spot. In addition, some sessions will have limited seating, and early bird registrants will receive first access to sign up for these sessions. Registering early is the best way to ensure you don’t miss out on the full conference experience.

Scholarship Information

If you would like to be considered for a scholarship, please complete the official TIC-CON26 Scholarship Application by 11:59pm ET on Sunday, May 3. All applicants will be notified of their status no later than May 8. Scholarship funds are very limited and demand is very high. We appreciate your patience and understanding as we work to provide this support to members of the community in need. If you have any additional questions, please contact conference@tourette.org.

Ready to Join Us?

Register today for TIC-CON26 in Nashville!

Let’s Beat The Heat Together at Wapelhorst Water Park in St. Charles, Aug 23!!!

“Rollin in Style” Skating Event!!

Saturday, April 12th, 11:00 am- 1:00 pm

RSVP by Friday, April 4th: missouritsa@yahoo.com

Let’s All Get Involved!

Back to School Swim Party

Saturday, August 24th -12:30 – 4pm

Concordia Turners

6432 Gravois Road

St Louis, MO 63116

The Pool at Concordia Turners Club has both a shallow & deep end, a diving board, as well as certified lifeguards, and Snack Shack on site.  Flotation devices and pool toys are welcome.

This is a family friendly event, so siblings and friends are welcome!  Just let us know how many swimmers vs. non-swimmers will attend when you RSVP.

The Missouri Chapter will be covering the cost of admission along with providing water & snacks from the Snack Shack! (outside food or beverages are not permitted)

Board members will be available at the event to network with families.

RSVP by: August 16th

Back to School Swim Party

Saturday, August 24th -12:30 – 4pm

Concordia Turners

6432 Gravois Road

St Louis, MO 63116

The Pool at Concordia Turners Club has both a shallow & deep end, a diving board, as well as certified lifeguards, and Snack Shack on site.  Flotation devices and pool toys are welcome.

This is a family friendly event, so siblings and friends are welcome!  Just let us know how many swimmers vs. non-swimmers will attend when you RSVP.

The Missouri Chapter will be covering the cost of admission along with providing water & snacks from the Snack Shack! (outside food or beverages are not permitted)

Board members will be available at the event to network with families.

missouritsa@yahoo.com

314-984-9019

Come celebrate back-to-school with a dip in the pool!

Fall Missouri Tourette Chapter Meeting

* Kramer Family Bonfire & Yard Games Extravaganza*

WHEN: Sunday, November 12 , 2023

TIME: 2:00PM – whenever

WHERE: Tami & Lonny’s house in St. Charles (address sent when you RSVP)

Let’s get together to celebrate FALL and get the kiddos out of the house and off electronics!!  We will set up some fun yard games and have a bonfire in our driveway.  Please bring a chair and snacks to share. 

Feel free to bring games, balls, bikes, scooters, etc., as there is a cul-de-sac to play in. Chapter Board Members will also be available for information and networking.

                    See you on the 12th for some Fall Family Fun!!

                    For more information or to RSVP, please contact:

                    Tami Kramer at TamiKramer@kw.com or 314-973-6938

Remember:  The Chapter meetings are for YOU and your family to meet

                    other Tourette families.  We need to have your active participation!

** Keep an eye out for our upcoming ‘23/’24 Schedule of Events coming soon to your email, Facebook and our Website.  **

TAA Youth Ambassador/Jr Youth Ambassador and Rising Leader Programs

Applications are now open through September 29th to apply to the TAA Youth Ambassador (YA) Program (ages 12-17), Jr Youth Ambassador Program (ages 7-11), and Rising Leader Program (ages 18-25).

All Programs give children, teens and young adults:

• An opportunity to connect with each other

• Learn about Tourette Syndrome

• Gain self-advocacy skills

• Develop leadership skills that will allow them to spread awareness and advocate for others in schools, the community and places of work.

Training takes place in Washington D.C. March 5th and 6th, 2024. A portion of travel costs and all of hotel expenses for the evenings of the training are covered by the TAA.

Please follow use this link https://tourette.org/youth-ambassador-program/ for more information. Or reach out to Haley Carlton haley.carlton@tourette.org or Wendy Wegman wendy.wegman@tourette.org for more information.

Successfully Transitioning to High School with Tourette Syndrome

Jul 27, 2023 06:00 PM  in Central Time (US and Canada)

Audience: Pre-Teens and Teens that will be transitioning to high school or teens already in high school that want to gain some tips for success. Are you having some jitters about your transition to high school? Are you looking for advice on communicating with peers and educators about your tics and school accommodations? Current high school freshman and TAA Youth Ambassador, Chayse Hevesi, and TAA Education Advisory Board Co-Chair Amanda Coffman, will explain how to survive and thrive with Tourette. They will walk the audience through tough conversations and provide them with the tools they need to foster a strong sense of confidence. Attendees will walk away from the presentation feeling ready to self-advocate and succeed! Presenters: Amanda Coffman, EAB Co-Chair and Chayse Hevesi, TAA Youth Ambassador

Click here to register!