Washington University – Research Study


The Washington University Research Participant Registry (RPR) invites people of all ages and backgrounds to participate in our research studies. Participating in the registry is at no cost to you and many of the studies supported by the registry offer compensation.

This email is sent as general information and may not apply to you.

Please forward to family, friends, and others who may be interested. For questions related to the featured study, please refer to the contact information listed in the flyer.

For information on additional research studies you might be eligible for please visit the Washington University StudySearch website at studysearch.wustl.edu/ or contact the Volunteer for Health office at 314-362-1000.

Follow Volunteer for Health (VFH) and the Research Participant Registry (RPR) on social media!

 

twitter.com/WashUVFH

facebook.com/WashURPR

instagram.com/washu_vfh/

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Missouri Chapter Family – We need your help!

Giving Tuesday is coming up this week.  Now, and as always, your contribution to our Missouri Chapter of the TAA is vital to help us continue to serve our area families.

As we no longer have a member/dues structure, the TAA does not continue to reflect any money directly to our local chapter. 

We depend solely on donations.

 Any donation made to the TAA goes only to the national organization.

You can now contribute directly to our Missouri Chapter online, through a link on the TAA website:   Tourette.org 

by following these steps:

 – Scroll down the Homepage to “Find My Local Chapter”(lower left) and click the “Learn More” link (DO NOT click the “Donate” link on the upper right toolbar of the Homepage.  This will send a donation only to TAA, and not our Missouri Chapter.)

– Under “Find a Local Chapter”, “State Results”,  click the link for “Missouri Chapter

– Click the “Make a Donation” link(upper right) and follow instructions.

***  You may still also donate by writing a check to: TAA/MO Chapter, Inc. 

And mailing it to:

TAA/MO Chapter, Inc.

3646 Dover Place

St. Louis, MO   63116

Your ongoing contributions are what keeps our MO Chapter going !!

Thank You in advance for your support of our important organization.

Gratefully,

TAA/MO Chapter Board

Youth Ambassador Programs online now *** Extended deadline! ***

We have EXTENDED the deadline to apply to become a Youth Ambassador, Junior Youth Ambassador, or Rising Leader for the TAA to December 23, 2022!

Apply to learn how to educate and advocate for all impacted by TS & Tic Disorders while making lifelong friends! By applying and attending, you will be entered to win an OCULUS VR HEADSET!

For additional in-person and virtual events, please browse the list below:

December 14: Continued Series of “Me and My Superpowers” Webinar
Register for the third session.

February 2-3, 2023: TS BTI Trainings – Virtual Occupational Therapist Training
Register now through January 20, 2023.

March 8, 2023: National Advocacy Day 2023
Register to Take Action on Tourette National Advocacy Day

Late 2022 – Early 2023: Online Support Groups
Register for a variety of online support groups on topics like LGBTQ+ issues and more.

(ORIGINAL POST BELOW)

Hello All,

The Youth Ambassador program information is live on the website.  Please see the message below from Wendy and Haley and share the information with your networks.

We are excited to announce that applications for the Youth Ambassador program are live on our website using the link below.

Applications are due December 1st, 2022. Please encourage any teens interested in applying to start their applications as soon as possible.

Also, we would appreciate you encouraging families of children ages 5-11 to apply to our Jr Youth Ambassador Program, as well as young adults ages 18-25. If you have Youth Ambassadors over the age of 17, please encourage them to apply to the Rising Leader Program.

Thank you for supporting these programs and please reach out to Haley Carlton and Wendy Wegman with any questions. Haley.carlton@tourette.org wendy.wegman@tourette.org

Shindig at the Kramer House

WHAT: Kramer Family Bonfire & Yard Games Extravaganza

WHEN: Saturday, Nov. 5th

TIME: 2:00PM – whenever

WHERE: Tami & Lonny’s house in St. Charles (address sent when you RSVP)

RSVP to Tami at 314-973-6938 or TamiKramer@kw.com

Let’s get together to celebrate FALL and get the kiddos out of the house and off electronics!!  We will set up some fun yard games and have a bonfire in our driveway.  Please bring a chair and your own snacks/drinks.  Feel free to bring games, balls, bikes, scooters, etc. as there is a cul-de-sac to play in.  See you on the 5th!!

Young Adult Support group

ANNOUNCEMENT!!

The Tourette Association of America is launching another session of the online Young Adult Support group this month for young adults with TS or Tic Disorders. There are limited spots available, and registration is on a first come, first-serve basis! If you are not accepted into the group due to meeting capacity, you will be added to the waitlist for the next session. In order to officially join the group, there are a few things you need to do:

Step 1: Review the session dates below to make sure you can commit to the days of the sessions and time. The group is taking place on the second Wednesday of the month from 7-8:30pm Eastern Standard Time

October 12, 2022

November 9, 2022

Break

January 11, 2023

February 8, 2023

March 8, 2023

April 12, 2023

May 10, 2023

June 14, 2023

July 12, 2023

August 9, 2023

September 13, 2023

October 11, 2023

Step 2: Review the attached Welcome Packet. This packet outlines the expectations they have for you as a member of the support group. Once you have reviewed it, please electronically sign, and return to Brenda Pearl ASAP (brenda.peart@tourette.org). Please note that there is a waitlist and spots will be reserved on a first come, first-serve basis.

Step 3: Once she has your signed packet, she will forward you a link to a pre-test so you can share more information about why you joined the group. This information will be shared with the facilitator to better inform the group sessions.

Step 4: Lastly, you will receive the link to register for the Zoom meetings in which each session will be held.

St. Louis Social Skills Classes

The Joshua Center has been offering social skills classes since 2008. We are now offering opportunities for kids to have fun hands-on activities with kids their age while learning appropriate social skills in new locations. Classes are for students with HFA, ADHD, TS and OCD K – 12th Grades

St. Louis Social Skills Classes
All classes are taught by two education professionals trained with the “Me and My World Social Skills
Games and Curriculum”.
Where: Crosspoint Church, 5001 Little Rock Road, St. Louis, MO 63128
When: 1st and 3rd Saturdays
Register: www.joshuacenter.com – under Programs, then Social Skills
Cost: $40 / each class

Missouri Chapter Back-to-School Event

WHEN:      Sunday, October 2nd   1:45-3:15pm (must arrive by 1:30 to check in)

WHERE:   Go Ape! Zip line & Treetop Adventure

                13219 Streetcar Dr. Maryland Heights, MO 63043

Swing back into the school year with us!

Join us for an afternoon of aerial fun with a Tree Top Journey, while navigating suspended bridges, obstacles and zip lines, immersed in nature for an hour-long adventure.  Meet us at the entrance.  Gloves are required (your own or for purchase). Comfortable clothing (thighs/waists covered), closed toe shoes, long hair tied back.

Waivers must be completed to participate and can be accessed from the link below or filled out at the venue.

Meet us at the Entrance by 1:15pm. We will have a place for parents to meet and watch.  Water will be provided. School information folders will also be available.

Info that is more specific is available at goape.com

RSVP to Vickey Harper by September 29th

Text: 314-283-1232 / Email: vharper@wustl.edu

Please sign the waiver in advance: https://www.goape.com/waivers/

Missouri Tourette Chapter – May Family Fun Night

Friday, May 20, 2022

6:30pm – 8:30pm

Amp Up Action Park

13901 Manchester Rd.

St. Louis, MO 63011

At Amp Up Action Park there’s guaranteed fun at every turn! Attractions include pro kart racing, laser tag, virtual reality, high-ropes ninja course and lots of arcade games.

All attendees must have a Registration Waiver on file with Amp Up.  Find the Waiver online here, or in person at Amp Up

http://austlouis.clubspeedtiming.com/cs-registration/

RSVP to Roxie Ewing by May 6th:

Text: 314-707-1203 / RoxannSchaeferEwing@gmail.com

Meet Our New Missouri Rising Leader (3/26/2022)

Hello, my name is Brady Whelihan, and I am a TAA Rising Leader. I’m 19 years old, and I was diagnosed at 6 years old.

I wanted to pursue being a Rising Leader, because over the years I’ve had some pretty severe tics, as well as comorbids like: Anxiety, ADHD, and OCD. I want to be able to help people learn more information about Tourette, families included.

Please feel free to contact me for more information or if you just want someone to talk to. 

bwhelihanmusic@gmail.com

573-825-2167

Revised 2022 MO Chapter Event Schedule (updated 2/21/22)

Due to ongoing COVID concerns this winter, some events had to be rescheduled.

Please the note the new schedule.

As events approach look for more detailed information our Website: missouritsa.org and Facebook pages: Greater Missouri Tourette Syndrome Association Tourette Families Missouri, also by our Email List Notifications.

APRIL  –   Saturday, 4/9, 11am-1pm

Family Golf Outing – Tower Tee Golf/Affton, MO

MAY  –  Friday, 5/20, 6:30pm

Family Fun Night  –  Amp Up Action Park/Manchester, MO

An evening of fun and fellowship with go karts, laser tag, ropes course, video game package.  Ax throwing and concessions also available.  Spend time with other TS families and chapter boardmembers at a dedicated meeting spot.

AUGUST  –  Date to be Determined

Go Ape! Zipline & Adventure Park/Maryland Heights, MO

Tree Top Journey package – outside zipline/elevated obstacle course with instruction.  Appropriate for all ages (3’3” ht. minimum)