Our chapter hosts a number of meetings and events during the year.
Below is a summary of the upcoming (or recent) events:
Upcoming Planned Activities!!!
!!! Missouri Tourette Chapter Curling Event – the Coolest Game in Town !!!
WHEN: Saturday, April 15, 6:30 – 9:15 PM
WHERE: Creve Coeur Ice Arena
11400 Olde Cabin Rd., Creve Coeur, MO 63141
Join us as we Learn to Curl at the Creve Coeur Ice rink. We will be guests of the St. Louis Curling Club as they instruct us to curl. Traditional and stick “shuffleboard style” curling delivery instruction will be provided by curling club members. The event is free. Participation on ice is limited to ages 8 and older. Dress in warm comfortable clothes suitable for ice level inside the rink.
Meet us inside the entrance at 6:30 pm. On ice participants must sign a St. Louis Curling Club waiver and also be fitted with shoe grippers that will allow walking on the ice. Around 6:45 PM off ice instruction will be begin. We will then go on ice around 7 PM for the bulk of the instruction followed by team game play. Non participants may observe from the adjacent rink bleachers.
An early RSVP will be appreciated so that the appropriate number of curling club volunteers can be recruited.
****RSVP to Mike Catanzaro by April 12th**** mikejcatan@gmail.com or 636-458-5647 (no text)
February Bowling Night!!!
Shindig at the Kramer House!!!!
WHAT: Kramer Family Bonfire & Yard Games Extravaganza
WHEN: Saturday, Nov. 5th
TIME: 2:00PM – whenever
WHERE: Tami & Lonny’s house in St. Charles (address sent when you RSVP)
RSVP to Tami at 314-973-6938 or TamiKramer@kw.com
Let’s get together to celebrate FALL and get the kiddos out of the house and off electronics!! We will set up some fun yard games and have a bonfire in our driveway. Please bring a chair and your own snacks/drinks. Feel free to bring games, balls, bikes, scooters, etc as there is a cul-de-sac to play in. See you on the 5th!!
Missouri Chapter Back-to-School Event
/ LONNY KRAMER / LEAVE A COMMENT / EDIT
WHEN: Sunday, October 2nd 1:45-3:15pm (must arrive by 1:30 to check in)
WHERE: Go Ape! Zip line & Treetop Adventure
13219 Streetcar Dr. Maryland Heights, MO 63043
Swing back into the school year with us!
Join us for an afternoon of aerial fun with a Tree Top Journey, while navigating suspended bridges, obstacles and zip lines, immersed in nature for an hour-long adventure. Meet us at the entrance. Gloves are required (your own or for purchase). Comfortable clothing (thighs/waists covered), closed toe shoes, long hair tied back.
Waivers must be completed to participate and can be accessed from the link below or filled out at the venue.
Meet us at the Entrance by 1:15pm. We will have a place for parents to meet and watch. Water will be provided. School information folders will also be available.
Info that is more specific is available at goape.com
RSVP to Vickey Harper by September 29th
Text: 314-283-1232 / Email: vharper@wustl.edu
Please sign the waiver in advance: https://www.goape.com/waivers/
Missouri Tourette Chapter – May Family Fun Night
Friday, May 20, 2022
6:30pm – 8:30pm
Amp Up Action Park
13901 Manchester Rd.
St. Louis, MO 63011
At Amp Up Action Park there’s guaranteed fun at every turn! Attractions include pro kart racing, laser tag, virtual reality, high-ropes ninja course and lots of arcade games.
All attendees must have a Registration Waiver on file with Amp Up. Find the Waiver online here, or in person at Amp Up
http://austlouis.clubspeedtiming.com/cs-registration/
RSVP to Roxie Ewing by May 6th:
Text: 314-707-1203 / RoxannSchaeferEwing@gmail.com
Revised 2022 MO Chapter Event Schedule (updated 2/21/22)
Due to ongoing COVID concerns this winter, some events had to be rescheduled.
Please the note the new schedule.
As events approach look for more detailed information our Website: missouritsa.org and Facebook pages: Greater Missouri Tourette Syndrome Association & Tourette Families Missouri, also by our Email List Notifications.
APRIL – Saturday, 4/9, 11am-1pm
Family Golf Outing – Tower Tee Golf/Affton, MO
MAY – Friday, 5/20, 6:30pm
Family Fun Night – Amp Up Action Park/Manchester, MO
An evening of fun and fellowship with go karts, laser tag, ropes course, video game package. Ax throwing and concessions also available. Spend time with other TS families and chapter boardmembers at a dedicated meeting spot.
AUGUST – Date to be Determined
Go Ape! Zipline & Adventure Park/Maryland Heights, MO
Tree Top Journey package – outside zipline/elevated obstacle course with instruction. Appropriate for all ages (3’3” ht. minimum)
Virtual Gaming Night Feb 11th!!!!
Let’s get together- Virtually!
Join the Tourette Association, Missouri Chapter’s youth for a fun virtual gaming event! We’re looking forward to playing this top trending multiplatform game together!
Who will be the Imposter!?!
GET THE GAME: 1) http://www.innersloth.com/gameAmongUs.php
2) Downloading Among Us is free from your phone’s App Store
WHEN: Friday, February 11th at 6:30pm CST
WHERE: Karen Balk is inviting you to a scheduled Zoom meeting.
Topic: TAA Meeting
Time: Feb 11, 2022 06:30 PM Central Time (US and Canada)
Join Zoom Meeting
https://wustl-hipaa.zoom.us/j/96160612160
Meeting ID: 961 6061 2160
HOW: Download & get to know the game before 6:30 pm for ultimate player time!
WHO: Questions? Contact RoxannSchaeferEwing@gmail.com
Share with other TS families!
See you on Among Us!!
SAVE THE DATE: Tower Tee Golf is our next event. April 9th 11am -1pm!
January Missouri Tourette Chapter Meeting: Strategies to Help Transition to College and Work
WHEN: Wednesday, January 19 7:00 pm CST
WHERE: Zoom Meeting
Join us as Karen Balk, an occupational therapist at Washington University, team member of STL TAA Center of Excellence, and vice chair for MO TAA Chapter presents on strategies to help ease the transition to college and work.
Karen Balk is inviting you to a scheduled Zoom meeting.
Topic: TAA Work
Time: Jan 19, 2022 07:00 PM Central Time (US and Canada)
Join Zoom Meeting
https://wustl-hipaa.zoom.us/j/92892440100
Meeting ID: 928 9244 0100
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Meeting ID: 928 9244 0100
WHEN: Wednesday, January 19 7:00 pm CST
WHERE: Zoom Meeting
Join us as Karen Balk, an occupational therapist at Washington University, team member of STL TAA Center of Excellence, and vice chair for MO TAA Chapter presents on strategies to help ease the transition to college and work.
Karen Balk is inviting you to a scheduled Zoom meeting.
Topic: TAA Work
Time: Jan 19, 2022 07:00 PM Central Time (US and Canada)
Join Zoom Meeting
https://wustl-hipaa.zoom.us/j/92892440100
Meeting ID: 928 9244 0100
One tap mobile
+13017158592,,92892440100#US (Washington DC)
+13126266799,,92892440100#US (Chicago)
Dial by your location
+1 301 715 8592 US (Washington DC)
+1 312 626 6799 US (Chicago)
+1 646 558 8656 US (New York)
+1 253 215 8782 US (Tacoma)
+1 346 248 7799 US (Houston)
+1 669 900 9128 US (San Jose)
Meeting ID: 928 9244 0100
Find your local number: https://wustl-hipaa.zoom.us/u/abZgTB8F4F
Join by SIP
92892440100@zoomcrc.com
Join by H.323
162.255.37.11 (US West)
162.255.36.11 (US East)
115.114.131.7 (India Mumbai)
115.114.115.7 (India Hyderabad)
213.19.144.110 (Amsterdam Netherlands)
213.244.140.110 (Germany)
103.122.166.55 (Australia Sydney)
103.122.167.55 (Australia Melbourne)
149.137.40.110 (Singapore)
64.211.144.160 (Brazil)
149.137.68.253 (Mexico)
69.174.57.160 (Canada Toronto)
65.39.152.160 (Canada Vancouver)
207.226.132.110 (Japan Tokyo)
149.137.24.110 (Japan Osaka)
Meeting ID: 928 9244 0100
December Missouri Tourette Chapter Meeting Youth Ambassadorship in the TAA
WHEN: Friday, December 17, 6:00 pm CST
WHERE: Zoom Meeting
Join us for a great overview of what is involved in becoming a Youth Ambassador for the Tourette Association, and what the journey has been like for those who have traveled it. This evening will be hosted by our former YA/current YA Coordinator, Drew Guise. He will be joined by our current YA, high school senior, Mia Eschman. You will hear about their experiences, be able to ask questions, and learn valuable information about the 2022 YA training and application process.
Join Zoom Meeting
https://wustl-hipaa.zoom.us/j/98718181462
Meeting ID: 987 1818 1462
If you, or your child(12-17 yrs. old), have ever thought of exploring this wonderful program of advocacy, learning, leadership and sharing experiences, Please Join Us Friday Night!
/ LONNYKRAMER / LEAVE A COMMENT / EDIT
Hello MO Chapter Family,
Here’s a schedule of our chapter events for the upcoming school year. Keep on the lookout for more details as the time for each gets closer. Direct any inquiries back to: missouritsa@yahoo.com.
We hope to see many of you at one or more of these!
2021/22 Chapter Events Schedule
As these events approach, look for more detailed information on our Website: missouritsa.org, and Facebook Pages: Greater Missouri Tourette Syndrome Association & Tourette Families Missouri
Specific timely details will also be sent out by Email List notifications. If you are currently not on our Email List and would like to be, please request to do so at: missouritsa@yahoo.com
October – 10/23/21, 1-3 pm (This event was a great time! I hope you made it!)
– Family Fall Festival Get-Together – Brookdale Farms, Eureka
December (Date/Time – TBA)
– Youth Ambassador Virtual Presentation / Zoom – “What’s Involved in Youth
Ambassadorship”. A great overview of what is involved in becoming a TAA Youth Ambassador, and what the journey has been like for those who have traveled it, hosted by our former YA /current YA Coordinator, Drew Guise.
January – 1/19/22, 7-8:30pm / Zoom
-Beyond High School – What Comes Next? – Virtual Presentation by Karen
Balk, Occupational Therapist with the Washington University Movement Disorders Clinic/TAA Center of Excellence. Karen will discuss issues for our older HS students, young adults and families who will be dealing with this soon – touching on suggestions and techniques for college prep, jobs, interviewing skills, etc.
February – 2/11/22, 6:30pm
– Winter Family Fun Night – Amp Up Action Park/Manchester Rd (near 141).
Enjoy an evening of fun and fellowship with go-karts, laser tag, ropes course, video game package. Axe throwing and concessions also available. Spend time with other TS families and chapter board members at a dedicated meeting spot.
April – 4/9/22, 11am-1pm
– Family Golf Outing – Tower Tee Golf/Affton, MO
Join in an afternoon of fun, including instruction and a talk by Craig Story, local golf pro and long time friend of our chapter, who has Tourette himself. Driving range, mini-golf, playground and lunch will be provided for kids. A putting green and batting cages are also available.
May – 5/21 or 5/22, early afternoon
-Swing Into Summer – Go Ape! /Maryland Hts.
TreeTop Journey Pkg. – Outside zipline/elevated obstacle course with instruction. Appropriate for all ages (3’3” ht. minimum).
Family Fun Day Pictures!!!
Fall Family Fun Day — Brookdale Farms!!!
It’s time to get back together and have some fun with friends you may have seen for too long! Your Missouri Tourette Chapter is sponsoring an amazing afternoon of Fall Family Fun at Brookdale Farms!
WHEN: Saturday, October 23, 2021 1:00-3:00pm
WHERE: Brookdale Farms/8004 Twin Rivers Rd. Eureka,MO 63025
(Look for the Tourette Association sign to check-in)
Join us for an afternoon of Fall Fun!
General Admission will be paid by the chapter for Parents and Children, and includes: Corn Maze, Petting Zoo, Cow Train, Hayrides, Inflatables, Playground.
Additional Attractions are available at your own cost, including: Pony Rides, Pumpkin Slingshot, Pumpkin Patch, and Concessions.
Check out the website for more details: brookdalefarmsinc.com
View dozens of Scarecrows on your trip as part of the Eureka Scarecrow Festival. Find an interactive Scarecrows map at: http://www.eurekascarecrowfestival.com/map
** There will be School/Parent packets available as well as Boardmembers present to answer questions **
**RSVP to Lynn Dunlap by Oct. 22: missouritsa@yahoo.com or 314-984-9019
We look forward to seeing you there!
UPDATE: May 2nd: Tic Talk 2020 – The Tic Talk 2020 conference has been moved to an online format and will be held via Zoom.
Zoom is a online video conference platform that will be used to share the meeting content live, online. Speakers may also need to participate remotely via Zoom. If you do not already have a Zoom account, you can download the free Zoom app here:https://zoom.us/signup. Before the conference, all registrants will be emailed a link to attend the conference on May 2nd at 9:00 a.m. You can register online at: https://tics.wustl.edu/tic-talk-2020/
Tic Talk 2020 is a community event for patients, families and professionals interested in learning more about Tourette Syndrome and tic disorders. Local and national speakers will cover a variety of topics. Tic Talk 2020 is sponsored by the TAA Center of Excellence at Washington University in St. Louis, and supported by the Tourette Association of America, its Greater Missouri chapter and the McDonnell Center for Systems Neuroscience. CME is available for physicians, and Continuing Education certificates of attendance will be available to other professionals (educators, counselors, therapists).
Questions? Contact bbeato @ wustl . edu or 314-362-5041
PAST EVENTS:
February 21: Chesterfield Sports Fusion Family Fun Night – Join us for pizza and fun! The doors to our room open at 5:30 PM and we’ll have time to eat, fellowship, and get to know one another. Each child will receive a wristband to use for two hours of fun on the climbing wall, laser tag, mini-golf, and more! (Video games and coin operated activities are not included.)
January 09, 2020: Teen / College / Adult Panel – featuring an IL Youth Ambassador, Mia Eschman; our young adult speaker, Drew Guise; and Jacob Taylor, a young man with Tourette
October 19, 2019: “Tourette Around the Table” Fall Family Fun activity. Hosted by the Kramer family at their home in St. Charles, MO. Email: MissouriTSA @ yahoo.com for more info.
October 2, 2019 “The Life that Chose Us” For our Back-to-School meeting, we welcomed Dr. Jennifer Stenger, a high-school teacher and counselor, as well as the author of The Life That Chose Us; Educators with TS. She blends her own personal insights with sound research to help parents and educators navigate TS. You’ll have a better understanding of how TS shapes identity and relationships. This event was open to all family members, friends & teachers as a great way for your kids to interact with someone who has already walked through their most difficult years.
May 31, 2019: CBIT & Family Night – Cognitive Behavior Intervention for Tics (CBIT) has proven to be one of the best therapies for those with Tourette. CBIT focuses on tic-awareness and competing response training. Karen Balk, Occupational Therapist, is going to be leading a discussion for parents on this therapy and how it can benefit children and teens. In addition, Devin Downey, one of our young adults with Tourette, will be hosting a movie night for the kids in a Theater Room. They’ll be able to watch “The Secret Life of Pets” while we meet. Our host facility, Redeemer Church, has offered use of several meeting spaces to allow for families to attend and benefit from the time together. There is no cost for this event.
April 29, 2019: Tic Talk Symposium – Please make plans to join us on April 29, 2019 at a very special event! Open to all those who have Tourette, families impacted, and professionals who are interested in learning more about Tourette Syndrome and tic disorders, this will be an amazing day. Please check out the flier for more information and register on-line at: https://sites.wustl.edu/tics/tic-talk-2019/
February 22, 2019 – Family Friday Night Activity at Chesterfield Sports Fusion
We will meet at 5:30 PM on Friday, February 22nd for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.
Unless otherwise indicated, events will be held in the St. Louis area. Where available, follow the provided links for more information.
August 12, 2018 – Tourette’s Syndrome: Back to School meeting
Back to School “Splash”
**Tie-Dye****Snack****Swim**
WHEN: Sunday, August 12, 2018
TIME: Activities start at 1:00 PM
WHERE: River Chase Community Center – 990 Horan Dr., Fenton, MO.
We have reserved a Multipurpose Room from 1:00 to 3:00 PM. Please join us for Tie-Dye, Snacks, and relationship building.
** Tie-Dye: Bring your own Prewashed 100%Cotton shirt. We’ll have everything else! ** Pop-Corn and water provided. Please feel free to bring additional snacks for your family or to share with the group!
**There will be School/Parent packets available as well as Board members present to answer questions. Dr. Sheel Pathak (Pediatric Neurologist) will also be in attendance to talk to attendees.RSVP TO Lynn Dunlap by August 6th to lmchd52@gmail.com or Ph: 314-984-9019
In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019. Our Young Adult speaker, Drew Guise, can be reached at 636-938-3858.
PAST EVENTS:
November 4, 2017 – 3:00 pm – Fall Family Fun Kramer Family Home: An afternoon get together of community, bounce house, basketball, bikes, pizza, and a bonfire, with a chance for kids to hang out, and parents to connect with each other. RSVP to Tami Kramer Nov.1 (see Facebook page for details)
Back to School Event – Saturday, August 26, 2017 from 12:00 – 2:00 P.M.
WHERE: Family Golf and Learning Center-3717 Tree Court Industrial Blvd. (off Marshall Rd.) Valley Park, 63122
• FREE Mini-Golf
• FREE food (hot dog, soda, and chips)
• FREE bucket of balls for the driving range
• FREE TIME to speak with Craig Story-a professional golf instructor AND a member of the Tourette family (For more information on Craig or the Family Golf Center, visit: http://www.FamilyGolfOnline.com.)
**There will be School/Parent packets available as well as Board members present to answer questions **
June 4, 2017 – Gateway Grizzlies minor league baseball game Family Night. Has your child ever wanted to throw out a first pitch? We’ll be gathering at the Gateway Grizzlies ballpark for an evening game on Sunday, June 4th (game starts at 6:05 PM). Before the game, each TS child will have his / her name entered to win the opportunity to throw out the first pitch THAT NIGHT! The Chapter is sponsoring two tickets per family. Please RSVP to 636-938-3858 (Diana) or email: StLGuises@yahoo.com.
AND DON’T FORGET SUMMER CAMP! Please visit http://www.JoshuaCenter.com for more information on the special Tourette week June 5th to 8th, 2017. Register at: CAMP.
January 13, 2017 – Children’s Friday Night Activity at Chesterfield Sports Fusion
We will meet at 5:30 PM on Friday, January 13th for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.
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Golf Pro Craig Story pauses for a photo with children attending the May 30, 2009 golf outing organized by the TSA’s Greater Missouri chapter.
Greater Missouri TSA 