Meetings & Events

Our chapter hosts a number of meetings and events during the year.

Below is a summary of the upcoming events:

UPDATE: May 2nd: Tic Talk 2020 – The Tic Talk 2020 conference has been moved to an online format and will be held via Zoom.

Zoom is a online video conference platform that will be used to share the meeting content live, online. Speakers may also need to participate remotely via Zoom.  If you do not already have a Zoom account, you can download the free Zoom app here: https://zoom.us/signup. Before the conference, all registrants will be emailed a link to attend the conference on May 2nd at 9:00 a.m. You can register online at:  https://tics.wustl.edu/tic-talk-2020/ 

Tic Talk 2020 is a community event for patients, families and professionals interested in learning more about Tourette Syndrome and tic disorders. Local and national speakers will cover a variety of topics. Tic Talk 2020 is sponsored by the TAA Center of Excellence at Washington University in St. Louis, and supported by the Tourette Association of America, its Greater Missouri chapter and the McDonnell Center for Systems Neuroscience. CME is available for physicians, and Continuing Education certificates of attendance will be available to other professionals (educators, counselors, therapists).

Questions? Contact bbeato @ wustl . edu or 314-362-5041

PAST EVENTS:

February 21: Chesterfield Sports Fusion Family Fun Night – Join us for pizza and fun! The doors to our room open at 5:30 PM and we’ll have time to eat, fellowship, and get to know one another. Each child will receive a wristband to use for two hours of fun on the climbing wall, laser tag, mini-golf, and more! (Video games and coin operated activities are not included.)

January 09, 2020: Teen / College / Adult Panel – featuring an IL Youth Ambassador, Mia Eschman; our young adult speaker, Drew Guise; and Jacob Taylor, a young man with Tourette

October 19, 2019: “Tourette Around the Table” Fall Family Fun activity. Hosted by the Kramer family at their home in St. Charles, MO. Email: MissouriTSA @ yahoo.com for more info.

October 2, 2019 “The Life that Chose Us” For our Back-to-School meeting, we welcomed Dr. Jennifer Stenger, a high-school teacher and counselor, as well as the author of The Life That Chose Us; Educators with TS. She blends her own personal insights with sound research to help parents and educators navigate TS. You’ll have a better understanding of how TS shapes identity and relationships. This event was open to all family members, friends & teachers as a great way for your kids to interact with someone who has already walked through their most difficult years.

May 31, 2019: CBIT & Family Night – Cognitive Behavior Intervention for Tics (CBIT) has proven to be one of the best therapies for those with Tourette. CBIT focuses on tic-awareness and competing response training. Karen Balk, Occupational Therapist, is going to be leading a discussion for parents on this therapy and how it can benefit children and teens. In addition, Devin Downey, one of our young adults with Tourette, will be hosting a movie night for the kids in a Theater Room. They’ll be able to watch “The Secret Life of Pets” while we meet. Our host facility, Redeemer Church, has offered use of several meeting spaces to allow for families to attend and benefit from the time together. There is no cost for this event.

April 29, 2019: Tic Talk Symposium – Please make plans to join us on April 29, 2019 at a very special event! Open to all those who have Tourette, families impacted, and professionals who are interested in learning more about Tourette Syndrome and tic disorders, this will be an amazing day. Please check out the flier for more information and register on-line at: https://sites.wustl.edu/tics/tic-talk-2019/

February 22, 2019 – Family Friday Night Activity at Chesterfield Sports Fusion
We will meet at 5:30 PM on Friday, February 22nd  for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.

Unless otherwise indicated, events will be held in the St. Louis area.  Where available, follow the provided links for more information.

August 12, 2018  –  Tourette’s Syndrome: Back to School meeting

Back to School “Splash” 

 **Tie-Dye**   **Snack**  **Swim**                                                               

WHEN:                  Sunday, August 12, 2018                                                                                                  

TIME:                     Activities start at 1:00 PM                                                                                                    

WHERE:              River Chase Community Center –  990 Horan Dr., Fenton, MO. 

We have reserved a Multipurpose Room from 1:00 to 3:00 PM. Please join us for Tie-Dye, Snacks, and relationship building.                                                                                                                                       

**  Tie-Dye:  Bring your own Prewashed 100%Cotton shirt. We’ll have everything else! ** Pop-Corn and water provided. Please feel free to bring additional snacks for your family or to share with the group!

**There will be School/Parent packets available as well as Board members present to answer questions. Dr. Sheel Pathak (Pediatric Neurologist) will also be in attendance to talk to attendees.      RSVP TO Lynn Dunlap by August 6th to lmchd52@gmail.com or Ph:  314-984-9019   

In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019. Our Young Adult speaker, Drew Guise, can be reached at 636-938-3858.

PAST EVENTS:

November 4, 2017  –  3:00 pm – Fall Family Fun       Kramer Family Home:  An afternoon get together of community, bounce house, basketball, bikes, pizza, and a bonfire, with a chance for kids to hang out, and parents to connect with each other.  RSVP to Tami Kramer Nov.1 (see Facebook page for details)

Back to School Event – Saturday, August 26, 2017 from 12:00 – 2:00 P.M.
WHERE: Family Golf and Learning Center-3717 Tree Court Industrial Blvd. (off Marshall Rd.) Valley Park, 63122
• FREE Mini-Golf
• FREE food (hot dog, soda, and chips)
• FREE bucket of balls for the driving range
• FREE TIME to speak with Craig Story-a professional golf instructor AND a member of the Tourette family (For more information on Craig or the Family Golf Center, visit: http://www.FamilyGolfOnline.com.)
**There will be School/Parent packets available as well as Board members present to answer questions **

June 4, 2017 – Gateway Grizzlies minor league baseball game Family Night. Has your child ever wanted to throw out a first pitch? We’ll be gathering at the Gateway Grizzlies ballpark for an evening game on Sunday, June 4th (game starts at 6:05 PM). Before the game, each TS child will have his / her name entered to win the opportunity to throw out the first pitch THAT NIGHT! The Chapter is sponsoring two tickets per family. Please RSVP to 636-938-3858 (Diana) or email: StLGuises@yahoo.com.
AND DON’T FORGET SUMMER CAMP! Please visit http://www.JoshuaCenter.com for more information on the special Tourette week June 5th to 8th, 2017. Register at: CAMP.

January 13, 2017 – Children’s Friday Night Activity at Chesterfield Sports Fusion
We will meet at 5:30 PM on Friday, January 13th for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.

 

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Golf Pro Craig Story pauses for a photo with children attending the May 30, 2009 golf outing organized by the TSA’s Greater Missouri chapter.