* Kramer Family Bonfire & Yard Games Extravaganza*
WHEN: Sunday, November 12 , 2023
TIME: 2:00PM – whenever
WHERE: Tami & Lonny’s house in St. Charles (address sent when you RSVP)
Let’s get together to celebrate FALL and get the kiddos out of the house and off electronics!! We will set up some fun yard games and have a bonfire in our driveway. Please bring a chair and snacks to share.
Feel free to bring games, balls, bikes, scooters, etc., as there is a cul-de-sac to play in. Chapter Board Members will also be available for information and networking.
See you on the 12th for some Fall Family Fun!!
For more information or to RSVP, please contact:
Tami Kramer at TamiKramer@kw.com or 314-973-6938
Remember: The Chapter meetings are for YOU and your family to meet
other Tourette families. We need to have your active participation!
** Keep an eye out for our upcoming ‘23/’24 Schedule of Events coming soon to your email, Facebook and our Website. **
Applications are now open through September 29th to apply to the TAA Youth Ambassador (YA) Program (ages 12-17), Jr Youth Ambassador Program (ages 7-11), and Rising Leader Program (ages 18-25).
• An opportunity to connect with each other
• Learn about Tourette Syndrome
• Gain self-advocacy skills
• Develop leadership skills that will allow them to spread awareness and advocate for others in schools, the community and places of work.
Training takes place in Washington D.C. March 5th and 6th, 2024. A portion of travel costs and all of hotel expenses for the evenings of the training are covered by the TAA.
Please follow use this link https://tourette.org/youth-ambassador-program/ for more information. Or reach out to Haley Carlton haley.carlton@tourette.org or Wendy Wegman wendy.wegman@tourette.org for more information.
Jul 27, 2023 06:00 PM in Central Time (US and Canada)
Audience: Pre-Teens and Teens that will be transitioning to high school or teens already in high school that want to gain some tips for success. Are you having some jitters about your transition to high school? Are you looking for advice on communicating with peers and educators about your tics and school accommodations? Current high school freshman and TAA Youth Ambassador, Chayse Hevesi, and TAA Education Advisory Board Co-Chair Amanda Coffman, will explain how to survive and thrive with Tourette. They will walk the audience through tough conversations and provide them with the tools they need to foster a strong sense of confidence. Attendees will walk away from the presentation feeling ready to self-advocate and succeed! Presenters: Amanda Coffman, EAB Co-Chair and Chayse Hevesi, TAA Youth Ambassador
Click here to register!
| Tue, Jul 25, 2023 5:00 PM – 6:00 PM CDT |
During this webinar, participants will learn about the available medical and experimental treatments for adults with Tourette Syndrome & Tic Disorders. Dr. Deeb & Dr. Cohen will provide information about the available treatment options along with the evidence for each treatment. Dr. Wissam Deeb is a neurologist & assistant professor at the UMass Chan Medical School. He completed his MD in Lebanon at the University of Balamand and his residency in neurology at the University of Massachusetts in 2015. He then moved to the University of Florida to pursue a movement disorders fellowship, then stayed there in faculty until June 2020. Dr. Deeb has a clinical and research interest in Parkinson’s disease and Tourette syndrome, focusing on incorporating technological advancements such as wearable devices in clinical and everyday care. Dr. Eric Cohen is part of a multi-generational chiropractic family and has served Palm Beach County Florida for over 35 years. He completed his doctorate in chiropractic medicine at the Palmer School of Chiropractic in Iowa in 1985. Along with doing gentle chiropractic, Dr. Cohen also does CranioSacral Therapy, Functional Endocrinology, Botanical Medicine and Homeopathy. He has experience treating adults with TS, including his own wife, and other co-morbidities associated with TS, such as anxiety and Autism. In his spare time, he plays bass in some local bands.
Click here to register!
WHEN: Saturday, April 15, 6:30 – 9:15 PM
WHERE: Creve Coeur Ice Arena
11400 Olde Cabin Rd., Creve Coeur, MO 63141
Join us as we Learn to Curl at the Creve Coeur Ice rink. We will be guests of the St. Louis Curling Club as they instruct us to curl. Traditional and stick “shuffleboard style” curling delivery instruction will be provided by curling club members. The event is free. Participation on ice is limited to ages 8 and older. Dress in warm comfortable clothes suitable for ice level inside the rink.
Meet us inside the entrance at 6:30 pm. On ice participants must sign a St. Louis Curling Club waiver and also be fitted with shoe grippers that will allow walking on the ice. Around 6:45 PM off ice instruction will be begin. We will then go on ice around 7 PM for the bulk of the instruction followed by team game play. Non participants may observe from the adjacent rink bleachers.
An early RSVP will be appreciated so that the appropriate number of curling club volunteers can be recruited.
****RSVP to Mike Catanzaro by April 12th**** mikejcatan@gmail.com or 636-458-5647 (no text)
Tourette National Advocacy Day is TOMORROW, but you can help from home NOW! Send in your Take Action Letter to your Senators and Representatives today to help the approximately 1.4 million people across the nation who live with TS and other persistent Tic Disorders receive proper support.
It takes LESS THAN 2 MINUTES to make a difference at the federal level for the TS & Tic Disorders community by simply filling in the form HERE and pressing “Send Message”. You are invited to add your personal story if you are comfortable.
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| Enroll Now for Joshua Center Camp |
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| Dear Parents, We’re so excited to announce that enrollment for our 2023 camp is open today! This year we’re setting sail and traveling the world – safely from our campground, of course! Click the button below to find out more information and to get enrolled. |
The Joshua Center follows the CDC and American Camp Association Guidelines (ACA) guidelines for camp regarding Covid. There is information for parents on the registration forms and more will be shared as we get closer to June.
Registration Opens on February 15th, 2023.
Greater Missouri TSA 