Jul 27, 2023 06:00 PM  in Central Time (US and Canada)

Audience: Pre-Teens and Teens that will be transitioning to high school or teens already in high school that want to gain some tips for success. Are you having some jitters about your transition to high school? Are you looking for advice on communicating with peers and educators about your tics and school accommodations? Current high school freshman and TAA Youth Ambassador, Chayse Hevesi, and TAA Education Advisory Board Co-Chair Amanda Coffman, will explain how to survive and thrive with Tourette. They will walk the audience through tough conversations and provide them with the tools they need to foster a strong sense of confidence. Attendees will walk away from the presentation feeling ready to self-advocate and succeed! Presenters: Amanda Coffman, EAB Co-Chair and Chayse Hevesi, TAA Youth Ambassador

Click here to register!

Tue, Jul 25, 2023 5:00 PM – 6:00 PM CDT

During this webinar, participants will learn about the available medical and experimental treatments for adults with Tourette Syndrome & Tic Disorders. Dr. Deeb & Dr. Cohen will provide information about the available treatment options along with the evidence for each treatment. Dr. Wissam Deeb is a neurologist & assistant professor at the UMass Chan Medical School. He completed his MD in Lebanon at the University of Balamand and his residency in neurology at the University of Massachusetts in 2015. He then moved to the University of Florida to pursue a movement disorders fellowship, then stayed there in faculty until June 2020. Dr. Deeb has a clinical and research interest in Parkinson’s disease and Tourette syndrome, focusing on incorporating technological advancements such as wearable devices in clinical and everyday care. Dr. Eric Cohen is part of a multi-generational chiropractic family and has served Palm Beach County Florida for over 35 years. He completed his doctorate in chiropractic medicine at the Palmer School of Chiropractic in Iowa in 1985. Along with doing gentle chiropractic, Dr. Cohen also does CranioSacral Therapy, Functional Endocrinology, Botanical Medicine and Homeopathy. He has experience treating adults with TS, including his own wife, and other co-morbidities associated with TS, such as anxiety and Autism. In his spare time, he plays bass in some local bands.

Click here to register!

WHEN: Saturday, April 15, 6:30 – 9:15 PM
WHERE: Creve Coeur Ice Arena

11400 Olde Cabin Rd., Creve Coeur, MO 63141

Join us as we Learn to Curl at the Creve Coeur Ice rink. We will be guests of the St. Louis Curling Club as they instruct us to curl. Traditional and stick “shuffleboard style” curling delivery instruction will be provided by curling club members. The event is free. Participation on ice is limited to ages 8 and older. Dress in warm comfortable clothes suitable for ice level inside the rink.

Meet us inside the entrance at 6:30 pm. On ice participants must sign a St. Louis Curling Club waiver and also be fitted with shoe grippers that will allow walking on the ice. Around 6:45 PM off ice instruction will be begin. We will then go on ice around 7 PM for the bulk of the instruction followed by team game play. Non participants may observe from the adjacent rink bleachers.

An early RSVP will be appreciated so that the appropriate number of curling club volunteers can be recruited.

****RSVP to Mike Catanzaro by April 12th**** mikejcatan@gmail.com or 636-458-5647 (no text)

Tourette National Advocacy Day is TOMORROW, but you can help from home NOW! Send in your Take Action Letter to your Senators and Representatives today to help the approximately 1.4 million people across the nation who live with TS and other persistent Tic Disorders receive proper support.

It takes LESS THAN 2 MINUTES to make a difference at the federal level for the TS & Tic Disorders community by simply filling in the form HERE and pressing “Send Message”. You are invited to add your personal story if you are comfortable.

Enroll Now for Joshua Center Camp

Dear Parents, We’re so excited to announce that enrollment for our 2023 camp is open today! This year we’re setting sail and traveling the world – safely from our campground, of course! Click the button below to find out more information and to get enrolled.

Camp Page

Camp 2023 Information

• Camp is for children with High-functioning Autism (HFA), Tourette, ADHD, and OCD
• Camp Session #1 – Grades 3rd – 5th. June 17th – June 19th.  Fee $450.00 (Our youngest campers must have completed 3rd grade to attend camp.)
• Camp Session #2 – Grades 6th – 12th. June 17th – June 21st. Fee $750.00
• Young Adult Camp Session: Out of high school. Must be enrolled in Young Adult Classes to attend. June 17th – June 20th. Must be enrolled in Young Adult Classes to attend; Fee $600.00

The Joshua Center follows the CDC and American Camp Association Guidelines (ACA) guidelines for camp regarding Covid. There is information for parents on the registration forms and more will be shared as we get closer to June.

Registration Opens on February 15th, 2023.

The Washington University Research Participant Registry (RPR) invites people of all ages and backgrounds to participate in our research studies. Participating in the registry is at no cost to you and many of the studies supported by the registry offer compensation.

This email is sent as general information and may not apply to you.

Please forward to family, friends, and others who may be interested. For questions related to the featured study, please refer to the contact information listed in the flyer.

For information on additional research studies you might be eligible for please visit the Washington University StudySearch website at studysearch.wustl.edu/ or contact the Volunteer for Health office at 314-362-1000.

Follow Volunteer for Health (VFH) and the Research Participant Registry (RPR) on social media!

 

twitter.com/WashUVFH

facebook.com/WashURPR

instagram.com/washu_vfh/

Giving Tuesday is coming up this week.  Now, and as always, your contribution to our Missouri Chapter of the TAA is vital to help us continue to serve our area families.

As we no longer have a member/dues structure, the TAA does not continue to reflect any money directly to our local chapter. 

We depend solely on donations.

 Any donation made to the TAA goes only to the national organization.

You can now contribute directly to our Missouri Chapter online, through a link on the TAA website:   Tourette.org 

by following these steps:

 – Scroll down the Homepage to “Find My Local Chapter”(lower left) and click the “Learn More” link (DO NOT click the “Donate” link on the upper right toolbar of the Homepage.  This will send a donation only to TAA, and not our Missouri Chapter.)

– Under “Find a Local Chapter”, “State Results”,  click the link for “Missouri Chapter”

– Click the “Make a Donation” link(upper right) and follow instructions.

***  You may still also donate by writing a check to: TAA/MO Chapter, Inc. 

And mailing it to:

TAA/MO Chapter, Inc.

3646 Dover Place

St. Louis, MO   63116

Your ongoing contributions are what keeps our MO Chapter going !!

Thank You in advance for your support of our important organization.

Gratefully,

TAA/MO Chapter Board

We have EXTENDED the deadline to apply to become a Youth Ambassador, Junior Youth Ambassador, or Rising Leader for the TAA to December 23, 2022! Apply to learn how to educate and advocate for all impacted by TS & Tic Disorders while making lifelong friends! By applying and attending, you will be entered to win an OCULUS VR HEADSET! For additional in-person and virtual events, please browse the list below: December 14: Continued Series of “Me and My Superpowers” Webinar Register for the third session. February 2-3, 2023: TS BTI Trainings – Virtual Occupational Therapist Training Register now through January 20, 2023. March 8, 2023: National Advocacy Day 2023 Register to Take Action on Tourette National Advocacy Day Late 2022 – Early 2023: Online Support Groups Register for a variety of online support groups on topics like LGBTQ+ issues and more.

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Hello All,

The Youth Ambassador program information is live on the website.  Please see the message below from Wendy and Haley and share the information with your networks.

We are excited to announce that applications for the Youth Ambassador program are live on our website using the link below.

Youth Ambassador Program

Applications are due December 1^st, 2022. Please encourage any teens interested in applying to start their applications as soon as possible.

Also, we would appreciate you encouraging families of children ages 5-11 to apply to our Jr Youth Ambassador Program, as well as young adults ages 18-25. If you have Youth Ambassadors over the age of 17, please encourage them to apply to the Rising Leader Program.

Thank you for supporting these programs and please reach out to Haley Carlton and Wendy Wegman with any questions. Haley.carlton@tourette.org wendy.wegman@tourette.org