An interesting article has just been published by Washington University in St. Louis: https://source.wustl.edu/2016/10/brain-scans-children-tourettes-offer-clues-disorder/
Our chapter hosts a number of meetings and events during the year.
Below is a summary of the upcoming events for the 2016-17 school year.
Unless otherwise indicated, events will be held in the St. Louis area. Where available, follow the provided links for more information.
April 29, 2017 – Family Golf Center: Craig Story, ranked by Golf Digest as one of the Top Ten teaching professionals, will meet with the Tourette families from noon until 2 PM. He will help the young people have a little fun as they learn how to drive golf balls! For more information on Craig or the Family Golf Center, visit: http://www.FamilyGolfOnline.com. Please rsvp to 314-984-9019 (Lynn) or email: email@example.com
June, 2017 – Gateway Grizzlies minor league baseball game Family Night (Date/Time to be announced)
In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019
Oct. 20 7-8:30 Back to School Night
Destiny Church (basement rear entrance) 1809 Des Peres Rd, St. Louis 63131
Stress, Attention Deficit, Hypersensitivities, Behavior
These are all issues that parents in Tourette Families are so familiar with. Cognitive Behavior Intervention for Tics, or CBIT, will be our topic for the evening. Karen Balk, a Clinical Occupational Therapist with Washington University Occupational Therapy Clinical Practice will be our speaker. As a therapist currently practicing CBIT in our area, she can relay information on this newest tic therapy, as well as how to access it locally. Karen is also quite knowledgeable on working with Sensory, Attention, and Stress Management issues that may be of concern to your child.
Teachers, Parents, and Families are all welcome. Information packets will be available for everyone. Hope to see you there!
January 13, 2017 – Children’s Friday Night Activity at Chesterfield Sports Fusion
We will meet at 5:30 PM on Friday, January 13th for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.
Call (314)984-9019 with any further questions.
Effective October 1st, 2016, all Tourette Association local chapter websites will be taken over as micro sites connected to the National Tourette Association of America site. This can be accessed by going to tourette.org Click on “Resources & Support” on the homepage, then “Find a Local Chapter” on the menu, and select Missouri.
You will be routed to the local Missouri Chapter site. We hope this transition will take place smoothly, and that our local information will be easily accessed. If you are having trouble with this, please contact us at our email: firstname.lastname@example.org
The meeting starts at 9 a.m. at the Drury Inn & Suites, 11980 Olive Blvd., Creve Coeur, MO 63141.
Please print and share this flier with anyone whom you think might be interested in attending. And please remember to RSVP to email@example.com.
Diagnosed with TS when he was 11 years old, Jaren attended a “Trip to the Hill” event with the Tourette Syndrome Association in Spring 2013, visiting members of the Missouri Congressional delegation. While in DC, Jaren was trained in the Youth Ambassador presentation on TS awareness and bullying.
Following Jaren’s presentation on March 6, there will be a meet-and-greet time for all attendees.
- MEETING DETAILS
March 6, 2014
6:30PM – 8:00PM
Children’s Mercy Northland
501 NW Barry Road
Kansas City, MO 64155
Questions or comments can be emailed to either firstname.lastname@example.org OR email@example.com.
Last month, we asked you to write your Members of Congress and encourage them to join the new Congressional Caucus on TS. We’re now asking that you write again, this time encouraging the same officials to send someone from their staff to a planned Congressional briefing session about TS on Sept. 17.
As always, we encourage you to re-phrase the template letter (available through the page linked above) in your own words.
From 7 to 8:30 p.m. on Thursday, October 3, our chapter plans to host a combined event for parents, teachers, and kids at Destiny Church, 1809 Des Peres Road, St. Louis, MO 63131 (near I-270 & Manchester Road).
Please park in the lower lot and use the back entrance of the church complex.
Our featured speaker for parents and teachers will be resource special educator Jullie Jacob, a recent SSD/Affton Teacher of the Year. Julie will offer information on a number of topics, including tips for (a) helping TS kids get organized and handle homework, (b) working with a child’s classroom teacher, (c) managing IEP meetings … and more.
Please feel free to invite your child’s teacher to this event. Informational packets will be available.
In addition, during Jullie’s presentation, we will be offering a game night for your children, so they can have some fun and social time, too.
We hope to see everyone there.
Help us change that situation.
Please visit — and encourage your friends and family to visit — this Web page. There, the “Take Action” link provides an easy opportunity to edit and email a personalized message to your U.S. Representative and both U.S. Senators from Missouri, encouraging them to start a similar caucus in the Senate. Be sure to add a sentence or two about how TS is relevant to your family.
We appreciate your support.
If you’re interested in participating, visit this Facebook group and ask to join, or send an email to Jackie Schechter at firstname.lastname@example.org.
Krauthamer notes that misophonia is “characterized by an anger/rage response to auditory stimuli, most prevalently chewing and eating sounds. Through time, triggers expand to include sounds such nail clipping, sniffing, and clearing one’s throat, and visual triggers such as leg-swinging and finger-pointing. The disorder is a developmental, neurological disorder, with an average age of onset in late childhood.”
She adds that “the neurobiology of this disorder has a great deal in common with Tourette [Syndrome],” although data indicate that only a small percentage of people with TS have misophonia and awareness of the disorder among the medical and therapeutic communities is limited.