Meetings and Events 2016-17

Our chapter hosts a number of meetings and events during the year.

Below is a summary of the upcoming events for the 2016-17 school year.

Unless otherwise indicated, events will be held in the St. Louis area.  Where available, follow the provided links for more information.

April 29, 2017 – Family Golf Center: Craig Story, ranked by Golf Digest as one of the Top Ten teaching professionals, will meet with the Tourette families from noon until 2 PM.  He will help the young people have a little fun as they learn how to drive golf balls! For more information on Craig or the Family Golf Center, visit: http://www.FamilyGolfOnline.com. Please rsvp to 314-984-9019 (Lynn) or email: missouritsa@yahoo.com

June, 2017 – Gateway Grizzlies minor league baseball game Family Night (Date/Time to be announced)

AND DON’T FORGET SUMMER CAMP! Please visit http://www.JoshuaCenter.com for more information on the special Tourette week June 5th to 8th, 2017. Register at: CAMP.

In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019

PAST EVENTS:

Oct. 20  7-8:30     Back to School Night

Destiny Church (basement rear entrance) 1809 Des Peres Rd, St. Louis 63131

Stress, Attention Deficit, Hypersensitivities, Behavior

These are all issues that parents in Tourette Families are so familiar with.  Cognitive Behavior Intervention for Tics, or CBIT, will be our topic for the evening.  Karen Balk, a Clinical Occupational Therapist with Washington University Occupational Therapy Clinical Practice will be our speaker.  As a therapist currently practicing CBIT in our area, she can relay information on this newest tic therapy, as well as how to access it locally.  Karen is also quite knowledgeable on working with Sensory, Attention, and Stress Management issues that may be of concern to your child.

Teachers, Parents, and Families are all welcome. Information packets will be available for everyone.     Hope to see you there!

January 13, 2017 – Children’s Friday Night Activity at Chesterfield Sports Fusion

We will meet at 5:30 PM on Friday, January 13th for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.

Call (314)984-9019 with any further questions.

 

Our Website is Moving!!

Effective October 1st, 2016, all Tourette Association local chapter websites will be taken over as micro sites connected to the National Tourette Association of America site.  This can be accessed by going to tourette.org    Click on “Resources & Support” on the homepage, then “Find a Local Chapter” on the menu, and select Missouri.

You will be routed to the local Missouri Chapter site.  We hope this transition will take place smoothly, and that our local information will be easily accessed.  If you are having trouble with this, please contact us at our email:  missouritsa@yahoo.com

Don’t Miss This April 5 Opportunity

MBHimle2

 

We hope you’ll join us, the morning of April 5, to hear nationally recognized Tourette Syndrome expert Dr. Michael Himle, pictured above. He will share information on TS research and the newest behavioral therapies, including Comprehensive Behavioral Intervention for Tics (CBIT).

The meeting starts at 9 a.m. at the Drury Inn & Suites, 11980 Olive Blvd., Creve Coeur, MO 63141.

Please print and share this flier with anyone whom you think might be interested in attending.  And please remember to RSVP to lmchd52@gmail.com.

March 6 Kansas City Support Group Meeting

The first Tourette Syndrome Association support group meeting in the Kansas City area is scheduled for March 6. The meeting will start with a 30-minute presentation by TSA Youth Ambassador Jaren Zimmermann. Details follow.

Diagnosed with TS when he was 11 years old, Jaren attended a “Trip to the Hill” event with the Tourette Syndrome Association in Spring 2013, visiting members of the Missouri Congressional delegation. While in DC, Jaren was trained in the Youth Ambassador presentation on TS awareness and bullying.

Following Jaren’s presentation on March 6, there will be a meet-and-greet time for all attendees.

    MEETING DETAILS
    March 6, 2014
    6:30PM – 8:00PM
    Community Room
    Children’s Mercy Northland
    501 NW Barry Road
    Kansas City, MO 64155

Questions or comments can be emailed to either dzimm1224@gmail.com OR jarenzimmermann.ya.tsa@gmail.com.

Action Alert: TS Caucus Update

Last month, we asked you to write your Members of Congress and encourage them to join the new Congressional Caucus on TS. We’re now asking that you write again, this time encouraging the same officials to send someone from their staff to a planned Congressional briefing session about TS on Sept. 17.

Here’s a link to assist you with making this request.

As always, we encourage you to re-phrase the template letter (available through the page linked above) in your own words.

October Back-to-School Event

From 7 to 8:30 p.m. on Thursday, October 3, our chapter plans to host a combined event for parents, teachers, and kids at Destiny Church, 1809 Des Peres Road, St. Louis, MO 63131 (near I-270 & Manchester Road).

Please park in the lower lot and use the back entrance of the church complex.

Our featured speaker for parents and teachers will be resource special educator Jullie Jacob, a recent SSD/Affton Teacher of the Year. Julie will offer information on a number of topics, including tips for (a) helping TS kids get organized and handle homework, (b) working with a child’s classroom teacher, (c) managing IEP meetings … and more.

Please feel free to invite your child’s teacher to this event. Informational packets will be available.

In addition, during Jullie’s presentation, we will be offering a game night for your children, so they can have some fun and social time, too.

We hope to see everyone there.

Action Alert: Missouri and the Congressional TS Caucus

WashingtonDC

The national TSA has worked closely with members of the U.S. House of Representatives to establish a Bipartisan Congressional Caucus on Tourette Syndrome. Unfortunately, as of Aug. 15, members of the Missouri delegation had not yet joined this caucus.

Help us change that situation.

Please visit — and encourage your friends and family to visit — this Web page. There, the “Take Action” link provides an easy opportunity to edit and email a personalized message to your U.S. Representative and both U.S. Senators from Missouri, encouraging them to start a similar caucus in the Senate. Be sure to add a sentence or two about how TS is relevant to your family.

We appreciate your support.

Aug. 17 Meeting for Teens, Young Adults

The first scheduled event for the newly formed group of Missouri teenagers and young adults with Tourette Syndrome will be from 2:00 to 4:30 p.m., Saturday, Aug. 17, at the St. Louis Zoo. Attendees will meet at the north entrance.

If you’re interested in participating, visit this Facebook group and ask to join, or send an email to Jackie Schechter at jspershing93@gmail.com.

New Book on Misophonia

Judith T. Krauthamer, vice chair of the Greater Washington TSA chapter, has written a new book on misophonia, a little known anger disorder.

Krauthamer notes that misophonia is “characterized by an anger/rage response to auditory stimuli, most prevalently chewing and eating sounds. Through time, triggers expand to include sounds such nail clipping, sniffing, and clearing one’s throat, and visual triggers such as leg-swinging and finger-pointing. The disorder is a developmental, neurological disorder, with an average age of onset in late childhood.”

She adds that “the neurobiology of this disorder has a great deal in common with Tourette [Syndrome],” although data indicate that only a small percentage of people with TS have misophonia and awareness of the disorder among the medical and therapeutic communities is limited.

Missouri TSA Teens and Young Adults Group

A group of Missouri teenagers and young adults with Tourette Syndrome are working to plan events in the St. Louis area, at which they can get together, share experiences, support each other, and generally, have some fun.

If you’re a Missouri teen or young adult with TS and would like to participate, visit this Facebook group and ask to join.

If you know a teen or young adult who might be interested, please pass along this information.

Finally, if you have questions, you can send an email to one of the group organizers, Jackie Schechter, at jspershing93@gmail.com.