URGENT: Comments Deadline April 20

We apologize for not posting this information sooner.

The American Psychiatric Association (APA) has released a draft of the proposed diagnostic criteria for the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), expected to be finalized and published in 2013. The public is encouraged to review the current draft and offers comments via the DSM-5 Web site by April 20.

To view and comment on the proposed changes, go here. The National TSA’s position on the proposed changes is available here.

The diagnostic criteria in the DSM are used widely by physicians, insurance companies, and other professionals for diagnosing medical conditions and managing medical-care reimbursements for individuals with neuropsychological disorders, including Tourette syndrome.

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Commenting Instructions

At the home page of the APA’s DSM-5 Web site, you should see a list in the center of the page. Find and click on this item: “Disorders Usually First Diagnosed in Infancy, Childhood, or Adolescence.”

Scroll down the new page. Toward the bottom, you should see “Tic Disorders.” Click on “307.23 Tourette’s Disorder.”

Again, scroll down the new page until you see the option: “Register Now.”

After clicking “Register Now,” fill in the form with your name and contact information; answer the security question and submit the page.

You will be sent an email with a temporary password.

Once you have this temporary password, go back to the APA’s DSM-5 Web site and log in (at the top, right-hand side of the screen) with your username and the password that was emailed to you.

After logging in, you will be taken back to the home page of the APA DSM-5 Web site. Again, click on “Disorders Usually First Diagnosed in Infancy, Childhood, or Adolescence” and then “307.23 Tourette’s Disorder.”

At this point, now that you’re registered, you should see a comment box at the bottom of the screen. Type in your comment, answer the security question, and submit your comment. You should receive a confirmation saying that your comment has been submitted.

Next Meeting: April 26

Please make plans to attend our next meeting. In addition to hearing from a guest presenter, we will be electing board members and officers.

The chapter needs your involvement.

Check the Meetings & Events page for details.

New Presentation: Tics and CBIT

The latest installment in the national TSA’s online information series is now available: “What are Tics and What is CBIT?”

This 31-minute presentation has information that may be of particular interest to school psychologists, parents, and educators.

School psychologists can play a key role in the identification of Tourette Syndrome (TS) and its symptoms. Some also work with parents and students to find ways to help manage both tic symptoms and the associated challenges, academic and social.

“Comprehensive Behavioral Intervention for Tics,” or CBIT, is a new, evidence-based, non-pharmacological treatment option for tic management, developed by members of the TSA Behavioral Sciences Consortium.

Douglas W. Woods, Ph.D, is the director of clinical training and a professor of psychology at the University of Wisconsin-Milwaukee. In this presentation, he reviews what tics are and provides an overview of the CBIT treatment intervention.

While CBIT may not be appropriate for all TS children, we hope you find this program informative.

TSA National Conference Update

The schedule for the TSA National Conference, April 15-18, is now available online.

We hope you will find the conference program interesting and relevant. Even for those who have been to the conference before, there are always new updates on perennial topics and new presenters to share their expertise. Time has also been scheduled each day for networking.

The conference registration page can be found here.

Joshua Camp

Joshua Camp can be a wonderful experience for children who have Tourette Syndrome and/or associated disorders and who have completed the third through eighth grades.

This year’s camp will be held June 13-17 at the Rotary Youth Club Camp, next to Lake Jacomo in Lee’s Summit, Mo.

Check here for an application and additional information.

Contribute to our Chapter’s Future

If you are interested in serving on our chapter board, please contact Maureen Downey at 314-892-0272 or modowney1@sbcglobal.net. She will forward your name to the nominating committee. Elections will be held at our Monday, April 26 meeting; details to be announced.

Next Support Group Meeting

Our next support group meeting in the St. Louis area is set for March 29. This meeting is specially designed for fathers, stepfathers, grandfathers, and other men who play a significant role in our TS families.

Check here for details.

Special TS Story fom Coppell, Texas

Here’s a heartwarming story out of Coppell, Texas, where high school senior Andrew Nesbitt, who has TS, was given a unique opportunity to be part of his high school’s winning soccer team, for which he volunteers time as team manager.

You can view the news segment from the local CBS affiliate here.

Andrew said he will never forget this moment: “I felt like I was on the team and just like any other player. It was awesome!”

Congratulations to Andrew, his coach, friends and family, who don’t let his Tourette Syndrome stand in his way!

New Presentation: ‘Helpful Tips for IEP Meetings’

The latest installment in the national TSA Education Committee’s information series is now available.

The new, 35-minute presentation — from Kathy Giordano, an education specialist with the national TSA — offers advice to parents and educators on how they can work together to develop an IEP (Individualized Education Plan) that best addresses the unique needs of each TS student.

The current and prior installments in this series are available here.

Joshua Center St. Louis Conference

Becky Ottinger, executive director of the Joshua Center for Neurological Disorders, and Mike Sumler, a counselor with that organization, will be the featured speakers at a one-day conference in the St. Louis area, March 10.

Check here for details.

The conference aims to help participants learn how to recognize symptoms associated with various neurological disorders and develop effective interventions, accommodations, and strategies for children with those disorders, including Asperger syndrome, Tourette syndrome, high-functoning autism, obsessive-compulsive disorder, OCD, bipolar, and pervasive development disorder.

The conference will emphasize information and instruction for teachers; however, parents, guardians, grandparents, and other independent caregivers and healthcare professionals also stand to benefit.