The family and friends of Evelyn Christmann, the great-grandmother of one of our TS kids, Joe Kasprzyk, donated $325. And Industrial Shelving Systems in Kirkwood provided a combined employer/employee donation of $375.
Thank you, to both, for supporting our efforts to help TS families in Missouri.
St. Louis native Marc Elliott will spend time with our group. Marc was born with a rare disease that left him with virtually no intestines. Then, at age nine, he was diagnosed with Tourette Syndrome. He now inspires audiences across the country with his life story and words of advice on tolerance and perseverance in the face of adversity. Marc graduated from Washington University in St. Louis and now lives in Boston.
Pizza and beverages will be provided and our group will have access to the gym for shooting hoops and other activities.
This event is free of charge, however, please RSVP by Jan. 14 to Maureen Downey (modowney1@sbcglobal.net) with the number of people attending from your family.
The purpose of the research is to compare children who go on to develop Tourette Syndrome (TS) with those who do not.
Participants are required to make four visits over approximately 12 months. Compensation is available.
For more information, including whom to contact if you’re interested in participating, please visit this site.
Following our well-attended September Students’ Panel, we are bringing back the very popular “Ask the Doctor/Ask the Pharmacist/Ask the Educator” Panel. This year’s panel will feature Maureen Downey, a TS parent and pharmacist; Lynn Dunlap, a TS parent, former special-education teacher, and currently a psychological examiner with the St. Louis County Special School District (SSD); and Nanette Ford, a speech and language pathologist for SSD.
Bring your questions and concerns to this special session — and ask friends, family members, and teachers to join you.
Check local cable or satellite listings to determine if Discovery Health is available on your channel lineup. The documentary will be re-televised several times. (All times listed at the Discovery Health Web site are ET.)
In this conference, Julie Hertzog — Bullying Prevention Project Director for PACER (Parent Advocacy Coalition for Educational Rights — talks about types of bullying, the increase in cyber-bullying, effective anti-bullying programs, and the need for communities to unite in their knowledge and response to the problem.
In addition to these new articles, you will find on this page a range of articles and features designed to inform and support people with Tourette Syndrome. Many of the topics on this page have been suggested by adults and young adults in the TSA community.
