New TS Education DVDs

TSA’s newest educational resource is now available, free of charge. Filmed at a full-day, live presentation, “Tourette Syndrome in The Classroom, School & Community” features the TSA Education Committee addressing a wide range of related topics.

As the title suggests, the program is designed to inform teachers, school nurses, psychologists, social workers, clinicians, bus drivers, administrators, and others about TS and ways to recognize and address TS inside and outside the classroom.

There are 16 chapters on the two-disc set. Viewers have the choice of selecting individual chapters or watching the entire program in one sitting.

Parents may want to suggest that their children’s teachers watch the first chapter on the first disc, “An Introduction to Tourette Syndrome,” as well as the sections on ADHD and OCD, or other topics they deem appropriate.

This resource is made available through the professional education outreach partnership between the national Tourette Syndrome Association (TSA) and the U.S. Centers for Disease Control & Prevention (CDC).

To obtain a free copy, while supplies last, follow this link. Please allow up to six weeks for delivery and observe the limit of one set per household.

TS Documentary Now Available Online

“Different is the New Normal,” a film that demystifies Tourette Syndrome, is now available for online viewing.

This documentary chronicles the life of Ariel Small, a 16-year-old boy with Tourette Syndrome. It premiered last month on WNET in New York. We encourage you to contact your local PBS station and request that they air “Different is the New Normal,” so that it can reach a larger audience.

For additional information about this documentary, visit the TSA website.

Research Opportunities

Two TS-related studies are being conducted by doctors at the Washington University School of Medicine.

Dr. Kevin Black is conducting a study with children between the ages of five and 17 who are experiencing a recent (past six months) onset of “tics” — repetitive, involuntary sounds or movements such as eye blinking, sniffing, abdominal tensing, or making small noises.

    The purpose of this study is to compare children who go on to develop Tourette Syndrome (TS) with those who do not. It is the same study as the one Dr. Black initiated last year, with two changes: The study previously considered children ages five to 14 (now five to 17) and defined “recent onset” as occurring in the past three months (now six months).

    Requirements include four visits over approximately 12 months, questionnaires, assessments, interviews, genetic testing (saliva sample), and MRI scan. Compensation is available.

In the second study, Dr. Black teams with Dr. Bradley Schlaggar to look at the way the brain works in people with Tourette Syndrome using brain imaging.

    This study is limited to children eight to 17 years of age who have Tourette Syndrome (chronic motor and/or vocal tics) and are able to safely have an MRI (e.g., no metal implants or braces).

    Requirements include a screening visit lasting up to 6 hours and an MRI visit lasting about 2 hours. Volunteers will be compensated for their time and effort: $50 for the screening visit and $25 for the MRI scanning.

Parental permission is required for both studies. For more information, contact the studies coordinator, Mary, at 314-362-7651.