TV Alert! 20/20 Tomorrow Night!

Tune in tomorrow, Friday, August 15 at 10:00 pm EST on ABC for “20/20” which will focus on successful individuals in sports and the arts who have Tourette Syndrome.

Featured will be actor and National Tourette Syndrome Ambassador Dash Mihok; Olympic swimmer Anthony Ervin and TSA Youth Ambassador Isabella. In addition, Dr. Jonathan Mink, from the University of Rochester, and the co-chair of TSA’s Scientific Advisory Board, will talk about the science behind TS and if it actually does help athletes perform better.

You can read more on the “20/20” website here – http://abcnews.go.com/Health/tourette-syndrome-make-superior-athlete/story?id=24977715 – and tune in tomorrow night to watch the full show!

How America’s goalie inspires focus on “ability” for Drew Guise, Missouri’s TSA Youth Ambassador

Check out Missouri TSA’s Youth Ambassador, Drew Guise, on News Channel 5 talking about how Tim Howard has inspired him to pursue his dreams and never let Tourette’s hold him back!

“Guise finds inspiration in Howard’s success.

“It proves that anything is possible… just because you have a disability you can’t let it hold you back,” he said. “(Howard) demonstrated that.”

But Guise is also inspiring people. He runs cross country, has leadership goals, and a passion for politics.

“I’d love to do great things in the world and I’d like to think I’m on my way,” he said.

For this 16-year-old high school junior, the sky sets no limits.”

http://www.ksdk.com/story/news/local/2014/07/02/how-americas-goalie-inspires-focus-on-ability-not-disability/12117817/

http://abcnews.go.com/WNT/video/personal-triumph-team-usa-goalkeeper-tim-howard-24257126

Today, Thursday, June 26th at 12pm EST the US team will be playing their 3rd game in the World Cup. US Goalkeeper Tim Howard has Tourette Syndrome and has never let it get in the way of his dreams. Please join (and ask your members to join!) national TSA in letting Tim Howard and everyone know that “We Believe” in our fellow Touretter.

Tim Howard, US Goalkeeper with Tourette Syndrome

Congratulations to Joseph for Raising Tourette Syndrome Awareness!

The Greater Missouri TSA congratulates  Joseph Kasprzyk, a 14 year old who just graduated  8th grade at Remington Traditional School in the Pattonville School District.  Jospeh swims on the swim team and is a member of the Pattonville chess team.  During the Tourette Syndrome Awareness month, Joseph and his friend, Austin, came up with ideas to raise money and awareness.  They created a week long event called, Spirit Week – Raising Awareness about Tourette Syndrome.
During the week, each day had a different theme. He also put up posters explaining Tourette Syndrome in his school to raise awareness. The  event was a great success!
Joseph hopes continue to bring more awareness and acceptance for all those who live with Tourette Syndrome.  Way to go Joseph!
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Kansas City Educare End of Year Event

Dear TSA Friends in the Kansas City area,

This SaturdayJune 14, from 8:30AM until 2:15PM, the Kansas City LINC (Local Investment Commission) is sponsoring its Educare End of Year Event. This is a free mini conference for parents, educators, alternative child care providers (such as grandparents), and anyone interested in learning new strategies on helping children succeed in life and learning.

Amanda Coffman of the national TSA Education Committee, will speak on “Understanding and Supporting Children with Tourette Syndrome” in two 90-minute sessions (9 AM until 10:30 AM; and 12:45 PM until 2:15 PM).  To RSVP for this free event call the Educare Reservation Line at (816) 889-5050 x1233

The Conference takes place at the Kauffman Conference Center, 4810 Rockhill Road, Kansas City, MO. For more information, please check out the Educare Event flyer:

http://static.squarespace.com/static/5075895f84ae84c1f4ec0443/t/53714326e4b002aab7a6d4ab/1399931686752/Educare%20End%20of%20Year%20Event%202014%20flyer.pdf

I hope to see you there!

All the best,

Dan Rostan

Tourette Syndrome Association Support Group Kansas City Area

May 22, 2014
Children’s Mercy Northland
501 NW Barry Road, Kansas City, MO 64155
6:30 to 8:00 PM

Join us for Tourette Syndrome Awareness month! We have 25 spots available for the meeting.

Contact Danielle Zimmermann at dzimm1224@gmail.com to RSVP

CBIT Therapists in MO

Here is  the  list of CBIT therapists for Tics and TS in Missouri:
Karen Balk, OTR/L
Wash.U/Occ.Therapy Clinic
4444 Forest Park Avenue
St. Louis, MO 63108
(314)286-1669
balk @ wustl.edu

Kaylee Breitenbucher, MOT, OTR/L
Wash.U/Occ.Therapy Clinic
4444 Forest Park Avenue
St. Louis, MO 63108
(314)369-7863
kbreitenbucher@wustl.edu

Laura Banning, APRN, CPNP*
Children’s Mercy Hospital and Clinics
Adele Hall Main Campus
Section of Neurology
2401 Gillham Road
Kansas City, MO 64108
Phone: (816) 234-3490
–and–
Children’s Mercy Northland
501 NW Barry Road
Kansas City, MO 64155
Phone: (816) 413-2500
(Children)

Janelle Gerling, MOTR/L
Occupational Therapist
Children’s Mercy Hospital
2401 Gillham Road
Kansas City, MO 64108
Phone: (816) 234-3380

Katie Maddox, OTR/L, ATP*
Children’s Therapy Center
University of Missouri Health Care
525 Keene St., Suite 101
Columbia, MO 65201
Phone:  (573) 882-7350
Fax:      (573) 882-7520
email:  maddoxkk@health.missouri.edu

Cheryl A. Richards, Ph.D.*
Clinical Psychologist
Dept. of Psychiatry
Washington University School of Medicine
25 S. Kingshighway
St. Louis, MO 63108
Phone: (314) 286-1723
(Adults/Children)
(Children)
*Completed

Also you can click here CBITMO to download a PDF file version of this list.

A Successful Spring Symposium

On April 5th, we held our 2nd annual Missouri Tourette Syndrome Spring Symposium at the Drury Inn . Nationally recognized Tourette Syndrome expert Dr. Michael Himle spoke on TS research and the newest behavioral therapies, including Comprehensive Behavioral Intervention for Tics (CBIT). It was a great turn out with over 50 people attending. 

Here are some pictures from the event:

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Don’t Miss This April 5 Opportunity

MBHimle2

 

We hope you’ll join us, the morning of April 5, to hear nationally recognized Tourette Syndrome expert Dr. Michael Himle, pictured above. He will share information on TS research and the newest behavioral therapies, including Comprehensive Behavioral Intervention for Tics (CBIT).

The meeting starts at 9 a.m. at the Drury Inn & Suites, 11980 Olive Blvd., Creve Coeur, MO 63141.

Please print and share this flier with anyone whom you think might be interested in attending.  And please remember to RSVP to lmchd52@gmail.com.

March 6 Kansas City Support Group Meeting

The first Tourette Syndrome Association support group meeting in the Kansas City area is scheduled for March 6. The meeting will start with a 30-minute presentation by TSA Youth Ambassador Jaren Zimmermann. Details follow.

Diagnosed with TS when he was 11 years old, Jaren attended a “Trip to the Hill” event with the Tourette Syndrome Association in Spring 2013, visiting members of the Missouri Congressional delegation. While in DC, Jaren was trained in the Youth Ambassador presentation on TS awareness and bullying.

Following Jaren’s presentation on March 6, there will be a meet-and-greet time for all attendees.

    MEETING DETAILS
    March 6, 2014
    6:30PM – 8:00PM
    Community Room
    Children’s Mercy Northland
    501 NW Barry Road
    Kansas City, MO 64155

Questions or comments can be emailed to either dzimm1224@gmail.com OR jarenzimmermann.ya.tsa@gmail.com.