Accordingly, we hope you’ll consider taking this brief, confidential survey by or before June 29 this year.
To learn more, visit this section of the TSA Online Store, and scroll down until you see the following listings:
Tourette Syndrome and Resilience (Items A127 and A127DD)
Identification of Social Skills Deficits in Children with Tourette Syndrome (Items A128 and A128DD)
In addition, a new brochure, “Bullying Prevention: Positive Strategies,” can be downloaded here, for no charge.
Visit this site — then click on the “Schedule” tab at the bottom — to see if your local PBS station is airing the documentary. If it’s not, consider contacting the station and asking them to air it.
For additional information about the documentary, which chronicles the life of Ariel Small, a 16-year-old boy with Tourette Syndrome, visit the TSA website.
Over 1,900 people with TS have joined the study, so far, but researchers are still looking for another 300 participants.
If you or a family member is interested, please consider the following information.
The study is seeking adults (ages 18 and older) and youth (ages 6 to 17) who have a diagnosis of TS from a doctor.
To begin the study, adults with TS will fill out a questionnaire about their tics and related symptoms. For youth with TS, a parent will be required to fill out the questionnaire for (or with) their child. The questionnaire can be completed online or over the phone. To start the questionnaire, please visit this website. The questionnaire takes about 20 minutes to complete online.
Answers to the questionnaire will be reviewed by the research team to determine if each participant with TS qualifies for the second part of the study, which involves giving a blood sample used for genetic analysis. Only one eligible family member with a TS diagnosis can provide a blood sample. Individuals with TS can participate in this study only one time. Some participants will also be selected to take part in a longer, optional interview.
To learn more about the study, visit this site or call: 1-877-883-9350 (1-TS STUDY E 50) on the East Coast, and 1-877-883-9950 (1-TS STUDY W 50) on the West Coast.
The event will feature free miniature golf, free food (hot dog, chips, and soft drink), and a free bucket of golf balls for the driving range. You’ll also have an opportunity to speak with Craig Story, a professional golf instructor who has TS. (Note: We last visited the Center and Craig in May 2009.)
Please send an RSVP email to: lmchd52@gmail.com.
We look forward to seeing you.
You can now watch the entire program online.
The content is designed to inform teachers, medical professionals, social workers, and others about TS, including ways to recognize and help those who have it.
An accompanying slideshow (in PDF) is available to download and print.
This excellent resource is made available through the professional education outreach partnership joining the Tourette Syndrome Association (TSA) and the U.S. Centers for Disease Control & Prevention (CDC.)
You can also obtain a physical copy of the DVDs by completing this online form.
There is no charge for this resource. Preference is given to TSA members. Orders limited to one per person, while supplies last.
Food and soft drinks will be covered by our chapter. Parents can either drop off their teenage children, or stay and visit with each other.
RSVP to Lynn Dunlap, by April 14, at either 314-984-9019 or lmchd52@gmail.com.
RSVP to Diana Guise, by March 9, at either 636-938-3858 or stlguises@yahoo.com.
Marc has overcome a number of challenges. He was born with a rare digestive disease that left him with virtually no intestines. Then, at age nine, he developed Tourette’s Syndrome. Now twenty-six, Marc inspires audiences across the country with his life story, illustrating the importance of tolerance and appreciating others for their unique gifts. He is also the author of a brand new book, What Makes you Tic? (Marc will gladly sign copies. Bring your own or purchase one at the event for $15.)
This event is a great opportunity for TS kids, families, and educators to meet Marc and learn from his experience.
Light refreshments will be served.
Please contact Lynn Dunlap with questions: lmchd52@gmail.com.
Funds have been established by TSA Board Members to assist those who wish to attend the TSA 40th Anniversary National Conference to be held at the Hyatt Regency Crystal City in Arlington, Va., in April.
Scholarship awards will be (a) based on need, (b) determined by the Conference Scholarship Committee, and (c) cover conference registration fees only; travel and hotel expenses will remain the responsibility of the award recipients.
Applications should be submitted as early as possible and no later than Friday, January 27, 2012, via one of the following methods:
Awards will be announced by Friday, February 10, 2012. All decisions of the Committee are final.
Application Links
For more information, please contact Michelle Gutmann at 718-224-2999, ext. 258, or Michelle.Gutmann@tsa-usa.org.
