In Search of the Genetic Origins of TS

The Tourette Syndrome Association International Consortium for Genetics (TSAICG) is working together with the National Institutes of Health (NIH) to find the genes involved in the development of TS.

Over 1,900 people with TS have joined the study, so far, but researchers are still looking for another 300 participants.

If you or a family member is interested, please consider the following information.

The study is seeking adults (ages 18 and older) and youth (ages 6 to 17) who have a diagnosis of TS from a doctor.

To begin the study, adults with TS will fill out a questionnaire about their tics and related symptoms. For youth with TS, a parent will be required to fill out the questionnaire for (or with) their child. The questionnaire can be completed online or over the phone. To start the questionnaire, please visit this website. The questionnaire takes about 20 minutes to complete online.

Answers to the questionnaire will be reviewed by the research team to determine if each participant with TS qualifies for the second part of the study, which involves giving a blood sample used for genetic analysis. Only one eligible family member with a TS diagnosis can provide a blood sample. Individuals with TS can participate in this study only one time. Some participants will also be selected to take part in a longer, optional interview.

To learn more about the study, visit this site or call: 1-877-883-9350 (1-TS STUDY E 50) on the East Coast, and 1-877-883-9950 (1-TS STUDY W 50) on the West Coast.

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