Tic Talk 2019 Symposium

TicTalk_2019_flyer

Please make plans to join us on April 29, 2019 at a very special event! Open to all those who have Tourette, families impacted, and professionals who are interested in learning more about Tourette Syndrome and tic disorders, this will be an amazing day. Please check out the flier for more information and register on-line at: https://sites.wustl.edu/tics/tic-talk-2019/

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Meetings and Events 2016-17

Our chapter hosts a number of meetings and events during the year.

Below is a summary of the upcoming events for the 2016-17 school year.

Unless otherwise indicated, events will be held in the St. Louis area.  Where available, follow the provided links for more information.

April 29, 2017 – Family Golf Center: Craig Story, ranked by Golf Digest as one of the Top Ten teaching professionals, will meet with the Tourette families from noon until 2 PM.  He will help the young people have a little fun as they learn how to drive golf balls! For more information on Craig or the Family Golf Center, visit: http://www.FamilyGolfOnline.com. Please rsvp to 314-984-9019 (Lynn) or email: missouritsa@yahoo.com

June, 2017 – Gateway Grizzlies minor league baseball game Family Night (Date/Time to be announced)

AND DON’T FORGET SUMMER CAMP! Please visit http://www.JoshuaCenter.com for more information on the special Tourette week June 5th to 8th, 2017. Register at: CAMP.

In addition – if you’d like to request an association speaker for your child’s school, please contact Lynn Dunlap at 314-984-9019

PAST EVENTS:

Oct. 20  7-8:30     Back to School Night

Destiny Church (basement rear entrance) 1809 Des Peres Rd, St. Louis 63131

Stress, Attention Deficit, Hypersensitivities, Behavior

These are all issues that parents in Tourette Families are so familiar with.  Cognitive Behavior Intervention for Tics, or CBIT, will be our topic for the evening.  Karen Balk, a Clinical Occupational Therapist with Washington University Occupational Therapy Clinical Practice will be our speaker.  As a therapist currently practicing CBIT in our area, she can relay information on this newest tic therapy, as well as how to access it locally.  Karen is also quite knowledgeable on working with Sensory, Attention, and Stress Management issues that may be of concern to your child.

Teachers, Parents, and Families are all welcome. Information packets will be available for everyone.     Hope to see you there!

January 13, 2017 – Children’s Friday Night Activity at Chesterfield Sports Fusion

We will meet at 5:30 PM on Friday, January 13th for an evening of sharing and fun. After a pizza dinner and some informational sharing, the Chapter will purchase a two-hour pass for children to enjoy time getting to know one another and playing games.

Call (314)984-9019 with any further questions.

 

Don’t Miss This April 5 Opportunity

MBHimle2

 

We hope you’ll join us, the morning of April 5, to hear nationally recognized Tourette Syndrome expert Dr. Michael Himle, pictured above. He will share information on TS research and the newest behavioral therapies, including Comprehensive Behavioral Intervention for Tics (CBIT).

The meeting starts at 9 a.m. at the Drury Inn & Suites, 11980 Olive Blvd., Creve Coeur, MO 63141.

Please print and share this flier with anyone whom you think might be interested in attending.  And please remember to RSVP to lmchd52@gmail.com.

March 6 Kansas City Support Group Meeting

The first Tourette Syndrome Association support group meeting in the Kansas City area is scheduled for March 6. The meeting will start with a 30-minute presentation by TSA Youth Ambassador Jaren Zimmermann. Details follow.

Diagnosed with TS when he was 11 years old, Jaren attended a “Trip to the Hill” event with the Tourette Syndrome Association in Spring 2013, visiting members of the Missouri Congressional delegation. While in DC, Jaren was trained in the Youth Ambassador presentation on TS awareness and bullying.

Following Jaren’s presentation on March 6, there will be a meet-and-greet time for all attendees.

    MEETING DETAILS
    March 6, 2014
    6:30PM – 8:00PM
    Community Room
    Children’s Mercy Northland
    501 NW Barry Road
    Kansas City, MO 64155

Questions or comments can be emailed to either dzimm1224@gmail.com OR jarenzimmermann.ya.tsa@gmail.com.

Symposium On New Therapies With National And Local Experts

WHEN: Sat., April 5th

TIME: 9 a.m. to 12:30 p.m.

WHERE: Drury Inn (Olive and I-270)

Our speaker will be Dr. Michael Himle, Ph.D, Dept. of Psychology, University of Utah, who is one of the foremost published researchers on CBIT (Cognitive Behavior Intervention for Tics) in the country. We will also be opening up the event for attendance by local professionals in the area who are already currently using this therapy in their practice.

We look forward to seeing you there!

Coffee and Conversation Meet Up

Coffee and Conversation for parents, pre-teens, teens, and young adults:

From 2:00pm to 3:45 p.m. on Saturday, October 26th, our teen/young adult group is hosting an event for parents, pre-teens, teens, and young adults at Kayacks Cafe, 270 N Skinker Blvd, St. Louis, MO, 63105 (a cafe in Washington University and Forest Park area). Come for a great conversation, coffee, and snacks!

October Back-to-School Event

From 7 to 8:30 p.m. on Thursday, October 3, our chapter plans to host a combined event for parents, teachers, and kids at Destiny Church, 1809 Des Peres Road, St. Louis, MO 63131 (near I-270 & Manchester Road).

Please park in the lower lot and use the back entrance of the church complex.

Our featured speaker for parents and teachers will be resource special educator Jullie Jacob, a recent SSD/Affton Teacher of the Year. Julie will offer information on a number of topics, including tips for (a) helping TS kids get organized and handle homework, (b) working with a child’s classroom teacher, (c) managing IEP meetings … and more.

Please feel free to invite your child’s teacher to this event. Informational packets will be available.

In addition, during Jullie’s presentation, we will be offering a game night for your children, so they can have some fun and social time, too.

We hope to see everyone there.

Aug. 17 Meeting for Teens, Young Adults

The first scheduled event for the newly formed group of Missouri teenagers and young adults with Tourette Syndrome will be from 2:00 to 4:30 p.m., Saturday, Aug. 17, at the St. Louis Zoo. Attendees will meet at the north entrance.

If you’re interested in participating, visit this Facebook group and ask to join, or send an email to Jackie Schechter at jspershing93@gmail.com.

Missouri TSA Teens and Young Adults Group

A group of Missouri teenagers and young adults with Tourette Syndrome are working to plan events in the St. Louis area, at which they can get together, share experiences, support each other, and generally, have some fun.

If you’re a Missouri teen or young adult with TS and would like to participate, visit this Facebook group and ask to join.

If you know a teen or young adult who might be interested, please pass along this information.

Finally, if you have questions, you can send an email to one of the group organizers, Jackie Schechter, at jspershing93@gmail.com.

St. Louis-Area TSA Youth Ambassador

Drew Guise alt edited

The newest youth ambassador for the Greater Missouri Chapter of the Tourette Syndrome Association is Drew Guise, 14.

Drew was diagnosed with TS at eight years old, when he was in the third grade at Eureka Elementary in the Rockwood School District. During the first few years, his symptoms were relatively minor. Then, as adolescence progressed, those symptoms began to rapidly take control of his life. By the time he was in fifth grade, Drew needed major assistance during even the most common day-to-day activities. Over the next two years, With the help of doctors, counselors, and family, Drew was eventually able to manage most of his externally visible symptoms. In April 2011, he travelled to Washington D.C. to participate in youth ambassador training.

Since then, Drew has spoken to both students and adults in a variety of settings, from classrooms to large-group venues. His presentation is a blend of factual information and personal anecdotes about his journey with TS over the years. Drew can speak to a number of topics including bullying, acceptance, and awareness of those around you.

To schedule Drew for a speaking engagement, call 636-938-3858 or send an email to stlguises@yahoo.com. Drew is accompanied by a parent or adult guardian to all events.

Follow this link to listen to a recent St. Louis-area radio interview, featuring Drew and his father, Marty.