WHEN: Sat., April 5th
TIME: 9 a.m. to 12:30 p.m.
WHERE: Drury Inn (Olive and I-270)
Our speaker will be Dr. Michael Himle, Ph.D, Dept. of Psychology, University of Utah, who is one of the foremost published researchers on CBIT (Cognitive Behavior Intervention for Tics) in the country. We will also be opening up the event for attendance by local professionals in the area who are already currently using this therapy in their practice.
We look forward to seeing you there!
WHEN: Thursday, February 6, 2013
TIME: 7:00 – 8:30 P.M.
WHERE: Destiny Church, 1809 Des Peres Road (off Manchester and I-270)
One of the most popular events for Tourette families is the “Talk to the Teens” panel discussion. We’re bringing this back for our February meeting. Speakers will include Drew Guise, our current Youth Ambassador, Taylor Blackwell, a Clayton HS student, and Jackie Schechter, a Wash U college student.
This event is open for all family members. It’s a great way for your kids to interact with some who have already walked through their most difficult years.
We look forward to seeing you there.
The time of the coffee and conversation event next Saturday has changed to 4:00pm in order to include more people. So we will now be meeting at Kayacks at 4:00pm. Hope to see many of you there!
Here is the new information for next Saturday. The only thing that has changed is the time!
What: Coffee and Conversation for pre-teens, teens, young adults, and parents
When: Saturday, October 26th
Time: 4:00pm
Where: Kayacks Cafe (270 N. Skinker Blvd., next to Washington University, near Forest Park)
Here are three important action alerts from TSA’s legislative action center. Please take the time to do all three and include your personal stories in each.
-Take Action Now to End the Government Shut Down!
We are still in a partial government shut down and this is harmful to all of us and every health community. With the federal shutdown, NIH, CDC, FDA and SAMHSA, which are so important to all of us, cannot fully function.
– October is National Bullying Prevention Month
“The End of Bullying Begins with Me” is the message during the National Bullying Prevention Month in October. PACER created this national campaign back in 2006 and the National Tourette Syndrome Association has been a partner because we believe that this is the time for communities to unite nationwide to raise awareness of Tourette Syndrome and bullying prevention through events, activities, outreach, and education.
– Continue to Support Tourette Syndrome Congressional Caucus
Working with the national Tourette Syndrome Association, the Caucus will help federal elected officials receive critical information about Tourette Syndrome (TS) to help them understand what it’s like to live with the disorder. Please take this time to share your personal stories.
Coffee and Conversation for parents, pre-teens, teens, and young adults:
From 2:00pm to 3:45 p.m. on Saturday, October 26th, our teen/young adult group is hosting an event for parents, pre-teens, teens, and young adults at Kayacks Cafe, 270 N Skinker Blvd, St. Louis, MO, 63105 (a cafe in Washington University and Forest Park area). Come for a great conversation, coffee, and snacks!
Last month, we asked you to write your Members of Congress and encourage them to join the new Congressional Caucus on TS. We’re now asking that you write again, this time encouraging the same officials to send someone from their staff to a planned Congressional briefing session about TS on Sept. 17.
Here’s a link to assist you with making this request.
As always, we encourage you to re-phrase the template letter (available through the page linked above) in your own words.
From 7 to 8:30 p.m. on Thursday, October 3, our chapter plans to host a combined event for parents, teachers, and kids at Destiny Church, 1809 Des Peres Road, St. Louis, MO 63131 (near I-270 & Manchester Road).
Please park in the lower lot and use the back entrance of the church complex.
Our featured speaker for parents and teachers will be resource special educator Jullie Jacob, a recent SSD/Affton Teacher of the Year. Julie will offer information on a number of topics, including tips for (a) helping TS kids get organized and handle homework, (b) working with a child’s classroom teacher, (c) managing IEP meetings … and more.
Please feel free to invite your child’s teacher to this event. Informational packets will be available.
In addition, during Jullie’s presentation, we will be offering a game night for your children, so they can have some fun and social time, too.
We hope to see everyone there.
Help us change that situation.
Please visit — and encourage your friends and family to visit — this Web page. There, the “Take Action” link provides an easy opportunity to edit and email a personalized message to your U.S. Representative and both U.S. Senators from Missouri, encouraging them to start a similar caucus in the Senate. Be sure to add a sentence or two about how TS is relevant to your family.
We appreciate your support.
If you’re interested in participating, visit this Facebook group and ask to join, or send an email to Jackie Schechter at jspershing93@gmail.com.
Krauthamer notes that misophonia is “characterized by an anger/rage response to auditory stimuli, most prevalently chewing and eating sounds. Through time, triggers expand to include sounds such nail clipping, sniffing, and clearing one’s throat, and visual triggers such as leg-swinging and finger-pointing. The disorder is a developmental, neurological disorder, with an average age of onset in late childhood.”
She adds that “the neurobiology of this disorder has a great deal in common with Tourette [Syndrome],” although data indicate that only a small percentage of people with TS have misophonia and awareness of the disorder among the medical and therapeutic communities is limited.
Greater Missouri TSA 