Please make plans to join us on April 29, 2019 at a very special event! Open to all those who have Tourette, families impacted, and professionals who are interested in learning more about Tourette Syndrome and tic disorders, this will be an amazing day. Please check out the flier for more information and register on-line at: https://sites.wustl.edu/tics/tic-talk-2019/
Tourette Syndrome General Information
New Book on Misophonia
Judith T. Krauthamer, vice chair of the Greater Washington TSA chapter, has written a new book on misophonia, a little known anger disorder.
Krauthamer notes that misophonia is “characterized by an anger/rage response to auditory stimuli, most prevalently chewing and eating sounds. Through time, triggers expand to include sounds such nail clipping, sniffing, and clearing one’s throat, and visual triggers such as leg-swinging and finger-pointing. The disorder is a developmental, neurological disorder, with an average age of onset in late childhood.”
She adds that “the neurobiology of this disorder has a great deal in common with Tourette [Syndrome],” although data indicate that only a small percentage of people with TS have misophonia and awareness of the disorder among the medical and therapeutic communities is limited.
Recommended Resource
The National TSA recommends this online resource for parents of children with disabilities.
Arranged by topic, in alphabetical order, the resource is easy to use and read, and it offers information on critical topics that might be otherwise difficult to understand, such as IDEA, the Individuals with Disabilities Education Act and IEPs or individualized education programs.
Survey: Your Perspective Wanted
If you have Tourette Syndrome (TS), care for or are close to someone with TS, the National TSA would like to learn more about the TS-related topics in which you’re most interetsed, in order to better respond to your needs.
Accordingly, we hope you’ll consider taking this brief, confidential survey by or before June 29 this year.
New Items from TSA Publications
TSA Publications has announced the addition to its catalog of several new items, all developed in response to ideas presented to the National TSA by individuals and families affected by Tourette Syndrome.
To learn more, visit this section of the TSA Online Store, and scroll down until you see the following listings:
- Musicians Talk About Music and TS: An Unscientific Exploration (Items A126 and A126DD)
Tourette Syndrome and Resilience (Items A127 and A127DD)
Identification of Social Skills Deficits in Children with Tourette Syndrome (Items A128 and A128DD)
In addition, a new brochure, “Bullying Prevention: Positive Strategies,” can be downloaded here, for no charge.
TS Video Program Available Online
Several thousand people have already requested free copies of the two-disk TSA video education program, “Tourette Syndrome in the Classroom, School, and Community.”
You can now watch the entire program online.
The content is designed to inform teachers, medical professionals, social workers, and others about TS, including ways to recognize and help those who have it.
An accompanying slideshow (in PDF) is available to download and print.
This excellent resource is made available through the professional education outreach partnership joining the Tourette Syndrome Association (TSA) and the U.S. Centers for Disease Control & Prevention (CDC.)
You can also obtain a physical copy of the DVDs by completing this online form.
There is no charge for this resource. Preference is given to TSA members. Orders limited to one per person, while supplies last.
CDC Web Resource
The National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the U.S. Centers For Disease Control (CDC) offers some useful online information about Tourette Syndrome (TS), including information on some of the CDC’s work with TS in epidemiology and other areas.
Follow this link to learn more.
TS Awareness Month Call to Action
Please review and act on this National TSA request today.
An Easy Way to Help Support TSA
Through May 8, if you shop online or in-person at any Barnes & Noble store for the book, Wishes for a Mother’s Heart — or any other items — a portion of the proceeds will benefit the national Tourette Syndrome Association. Remember to use ID number “10476034” when checking out and (online) click the box that says “Bookfair Order.”
New Articles for Adults/Young Adults with TS
Three new articles have been added to the ever-growing “Living With TS” section of the TSA website.
In addition to these new articles, you will find on this page a range of articles and features designed to inform and support people with Tourette Syndrome. Many of the topics on this page have been suggested by adults and young adults in the TSA community.
