Tourette Syndrome Association Support Group Kansas City Area

May 22, 2014
Children’s Mercy Northland
501 NW Barry Road, Kansas City, MO 64155
6:30 to 8:00 PM

Join us for Tourette Syndrome Awareness month! We have 25 spots available for the meeting.

Contact Danielle Zimmermann at dzimm1224@gmail.com to RSVP

CBIT Therapists in MO

Here is  the  list of CBIT therapists for Tics and TS in Missouri:
Karen Balk, OTR/L
Wash.U/Occ.Therapy Clinic
4444 Forest Park Avenue
St. Louis, MO 63108
(314)286-1669
balk @ wustl.edu

Kaylee Breitenbucher, MOT, OTR/L
Wash.U/Occ.Therapy Clinic
4444 Forest Park Avenue
St. Louis, MO 63108
(314)369-7863
kbreitenbucher@wustl.edu

Laura Banning, APRN, CPNP*
Children’s Mercy Hospital and Clinics
Adele Hall Main Campus
Section of Neurology
2401 Gillham Road
Kansas City, MO 64108
Phone: (816) 234-3490
–and–
Children’s Mercy Northland
501 NW Barry Road
Kansas City, MO 64155
Phone: (816) 413-2500
(Children)

Janelle Gerling, MOTR/L
Occupational Therapist
Children’s Mercy Hospital
2401 Gillham Road
Kansas City, MO 64108
Phone: (816) 234-3380

Katie Maddox, OTR/L, ATP*
Children’s Therapy Center
University of Missouri Health Care
525 Keene St., Suite 101
Columbia, MO 65201
Phone:  (573) 882-7350
Fax:      (573) 882-7520
email:  maddoxkk@health.missouri.edu

Cheryl A. Richards, Ph.D.*
Clinical Psychologist
Dept. of Psychiatry
Washington University School of Medicine
25 S. Kingshighway
St. Louis, MO 63108
Phone: (314) 286-1723
(Adults/Children)
(Children)
*Completed

Also you can click here CBITMO to download a PDF file version of this list.

A Successful Spring Symposium

On April 5th, we held our 2nd annual Missouri Tourette Syndrome Spring Symposium at the Drury Inn . Nationally recognized Tourette Syndrome expert Dr. Michael Himle spoke on TS research and the newest behavioral therapies, including Comprehensive Behavioral Intervention for Tics (CBIT). It was a great turn out with over 50 people attending. 

Here are some pictures from the event:

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Symposium On New Therapies With National And Local Experts

WHEN: Sat., April 5th

TIME: 9 a.m. to 12:30 p.m.

WHERE: Drury Inn (Olive and I-270)

Our speaker will be Dr. Michael Himle, Ph.D, Dept. of Psychology, University of Utah, who is one of the foremost published researchers on CBIT (Cognitive Behavior Intervention for Tics) in the country. We will also be opening up the event for attendance by local professionals in the area who are already currently using this therapy in their practice.

We look forward to seeing you there!

TALK TO THE TEENS: TS Meeting

WHEN: Thursday, February 6, 2013

TIME: 7:00 – 8:30 P.M.

WHERE: Destiny Church, 1809 Des Peres Road (off Manchester and I-270)

One of the most popular events for Tourette families is the “Talk to the Teens” panel discussion. We’re bringing this back for our February meeting. Speakers will include Drew Guise, our current Youth Ambassador, Taylor Blackwell, a Clayton HS student, and Jackie Schechter, a Wash U college student.

This event is open for all family members. It’s a great way for your kids to interact with some who have already walked through their most difficult years.

We look forward to seeing you there.

Coffee and Conversation Time Change

The time of the coffee and conversation event next Saturday has changed to 4:00pm in order to include more people. So we will now be meeting at Kayacks at 4:00pm. Hope to see many of you there!

Here is the new information for next Saturday. The only thing that has changed is the time!

What: Coffee and Conversation for pre-teens, teens, young adults, and parents
When: Saturday, October 26th
Time: 4:00pm
Where: Kayacks Cafe (270 N. Skinker Blvd., next to Washington University, near Forest Park)

Three Important Action Alerts

Here are three important action alerts from TSA’s legislative action center. Please take the time to do all three and include your personal stories in each.

-Take Action Now to End the Government Shut Down!
We are still in a partial government shut down and this is harmful to all of us and every health community. With the federal shutdown, NIH, CDC, FDA and SAMHSA, which are so important to all of us, cannot fully function.

– October is National Bullying Prevention Month
“The End of Bullying Begins with Me” is the message during the National Bullying Prevention Month in October. PACER created this national campaign back in 2006 and the National Tourette Syndrome Association has been a partner because we believe that this is the time for communities to unite nationwide to raise awareness of Tourette Syndrome and bullying prevention through events, activities, outreach, and education.

– Continue to Support Tourette Syndrome Congressional Caucus
Working with the national Tourette Syndrome Association, the Caucus will help federal elected officials receive critical information about Tourette Syndrome (TS) to help them understand what it’s like to live with the disorder. Please take this time to share your personal stories.

Coffee and Conversation Meet Up

Coffee and Conversation for parents, pre-teens, teens, and young adults:

From 2:00pm to 3:45 p.m. on Saturday, October 26th, our teen/young adult group is hosting an event for parents, pre-teens, teens, and young adults at Kayacks Cafe, 270 N Skinker Blvd, St. Louis, MO, 63105 (a cafe in Washington University and Forest Park area). Come for a great conversation, coffee, and snacks!